Loss of sense of smell

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hi everyone. Just thought I would pop on here again for advice. I am experiencing some loss of smell as well as the usual taste problems. My tumour was at base of tongue. I also have some definite hearing loss. Just wondering if that’s to do with lymph bring bunged up as sometimes the hearing clears. Any one else got these things. Many thanks snd wishing you all well. Lizzie123

RadioactiveRaz over 5 years ago

Hi Lizzie hearing loss can be attributed to chemo (cisplatin) same with taste snd smell that often us radiotherapy. I was the other way my smell and taste was accentuated. Your hearing loss I would mention at next consultation I kniw a few who have ended up with earring aids.
Hazel

Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo 3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life.
No questions too daft to ask.

I’m also an ambassador for https://oraclehnc.org.uk/

A leading head and neck cancer charity.

This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.

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Lizzie.123 over 5 years ago in reply to RadioactiveRaz

Hi Hazel. Will the sense of smell improve for you think? Why has this happened, I had no radiotherapy to my nose

Beesuit over 5 years ago in reply to Lizzie.123

Hi Lizzie. Smell should improve. Smell and taste are intertwined and just as your taste changes so does smell. Hearing loss can be serious, do tell your team.

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

RadioactiveRaz over 5 years ago in reply to Lizzie.123

Hi Lizzie as Dani says it’s all intertwined ears nose throat. It will improve given time as things start to regenerate is easier way of explaining it. But your hearing loss needs bringing consultant s attention.

Hazel

Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo 3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life.
No questions too daft to ask.

I’m also an ambassador for https://oraclehnc.org.uk/

A leading head and neck cancer charity.

This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.

https://oraclehnc.org.uk/patients-and-carers/patient-hub/webinars

Sophie66 over 5 years ago

Hi Lizzie

I had complete hearing loss in my left ear after my maxillectomy. Apparently there was a build up of fluid and it was not draining away. I spoke to my surgeon and he put in a stent and that solved the problem.

There may be a different cause in your case but I hope it is something as simple. Definitely discuss with your medical team as I am sure they would have come across this before.

Lyn

Sophie66

Sophie66 over 5 years ago in reply to Sophie66

Sorry it wasn't called a stent but a grommet i.e. a tube. I had it removed a couple of years after having it inserted and no further trouble with my hearing.

Lyn

Sophie66

Lizzie.123 over 5 years ago in reply to Sophie66

Thankyou Sophie. I feel it’s fluid related. Maybe lymph? I will tell my consultant next week. Lizzie

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