The Long & Winding Road

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That's just over 12 weeks since I finished my RT for Throat Cancer and I still do not feel back to anything like normal. I was advised that it would take some time but I never envisaged this period of recovery.

My throat is still quite sore but I have been somewhat successful with various foods - I managed scrambled egg + 1 rasher of bacon last week and yesterday I went through 4 Tesco Tempura Chicken Bites with a small portion of veg.

Still taking slow-release Oxycodone + ~3x OxyNorm during the day and Paracetamol 4 x 1000mg per day. Also loads of water due to the dry mouth. On that subject, my GP mad a mistake when I ordered more Cophosol dissolvable tablets they prescribed it as an A&B Pack of tubed liquid mixers. When I pointed this out to the pharmacy they said that it would be destroyed if I returned the incorrect item - I said that I would persevere with it rather than cause waste. GP was informed though and I suspect they have corrected the prescription.

I know that I am getting there, (very) slowly but surely, I just hope that it has all been worthwhile - PET/CT Scan due in the next couple of weeks and I see my oncologist on 2nd November.

Thanks again for all your support over the past few months Grinning

Bob

  • Hi Bob. Yes slowly slowly day by day. It took me a year before I was anything like normal. Your body has taken a real battering. You ARE doing ok. The Caphosol A/B is exactly the same after you’ve mixed it. The tablets are just easier. 
    Best of luck with the scan. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Bob yes Dani us right recovery is long and varied.   Baby steps is the way to go. Yes I had forgotten about tempura battered stuff it’s easy for swallowing. Well done. Good luck with scan mine was week 17

    Hazel x

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.
  • Sounds like you're doing well Bob.

    Good luck with your scan.

    Linda x