6 month anniversary

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Today marks 6 months since I rang the bell. We didn't manage our wedding anniversary meal the next day (no surprises there!), will celebrate tonight. 

Eating is pretty good, no problems swallowing, just the all too familiar dry mouth. Trying new (old favourites) things all the time, and so long as I have caphosol or gelclair to hand if I push it too far all good. No blisters for a few weeks. Even managed a curry this week. Can't say I enjoy food like I used to yet, but my waistline appreciates that! 

I get tired, but am back at work, so to be expected. Mentally in a much better place for that though. The greeting I get from the pooch when I get home melts my heart every day. The exercise and fresh air walking her are the best medicine. Also getting more of the much missed grandma time. 

 A bit of stiffness around neck and jaw, but the exercises relieve that. I must look like a mad woman as I drive to work stretching my mouth Rofl Massaging to help manage the lymphodema, sometimes feels like my neck is being squeezed. Clinic this week, hoping to see SLT just to check looking after voice properly. 

Week in a cottage with lots of dog walks and chilled time for the 3 of us planned at the end of the month. Looking forward to that. 

From some of my darkest days 6 months ago I look back in wonder at the progress. This beast is beatable and life can be bloomin' brilliant again. If you're in the thick of it now, never doubt yourselves, have faith and ask for help when needed. You'll get there!! 

Hugs all round and thanks to you all for helping, Ronnie x 

  • Oh, and the bald patch is now over an inch long, and curly!!! 

  • Well done Ronnie. Those milestones are important. It reminds us that there is life and a good one to be had and that we can all push past those awful few weeks after we are jettisoned from the accelerator room into the comfort of home. Bleak as those first few weeks are the sun does poke through in dribs  and drabs till it floods our hearts again. I sit typing this in the pouring rain but nothing puts out my living fire. I am so grateful and in awe of our NHS and how it manages to get us fixed despite the battles the doctors and nurses have to fight on a daily basis

    We’ve got through this and others will. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thanks Dani.

    You are so right, I am in complete awe of the teams that get us through this. They are worth their weight in gold. 

  • Hi Ronnie well done celebrate each milestone they are hard earned. Enjoy your break I’m sat in spain  eating tostada con tomato snd drinking coffee. Slk due to our brilliant n h s. Enjoy your half term break onwards and upwards. 
    hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • That's great to read Ronnie.  So pleased you're doing so well.

    Hope you enjoy your celebrations tonight.

    Linda x

  • Ronnie

    A Hard won milestone with many more to come.  You have come a very long way and achieved a lot in those 6 months.  

    Enjoy tonight!

    Peter
    See my profile for more details of my convoluted journey
  • Oh great! It sounds like you’re making really good progress Ronnie. I’m so pleased for you I’m 3 months ahead of you and enjoying life! As we can both testify, life does get better!