Post Radiotherapy

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Tomorrow, I will 5-weeks down the line from my last RT session, of 30, and, although slowly improving, I am still in quite a bit of discomfort with a very sore throat. Still on Oxycodone, Long and Short, for the pain and managing not too badly.

it feels like I am on a cycle of 3 days of improvement followed by 2 backward steps days. The improvements are progressing slowly but surely.

On the plus side, I had my first solid food this evening in about 3 months - 15% piece of breaded haddock slice with a few garden peas. I didn’t experience much in the way of flavour but it went down well.

Onward & Upwards,
Bob

  • Well done Bob. Yes the 2 steps forward one step back is a common theme. Stick with it you’ll get there in the end. Flavour and taste will slowly return fingers x

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Bob. Great to see you on here again. A piece of fish is a great achievement; more than I could manage at that stage. I was in pain killers if some sort til 12 weeks plus so nil desperandum. It does get better 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Bob,

    Well done on the fish! My first meal was weetabix, so you put me to shame! Didn't start stepping down pain relief until after my first clinic, got myself eating more then steadily came down in same steps I went up over a few weeks. Try not to get disheartened when you feel you've gone backwards, it's frustrating but happens. 21 weeks post treatment now. Pub lunch yesterday, enjoying food a bit now. Not like before yet, but more things taste nice and mouth not as dry and wrinkled so textures better. You'll get there! 

    Take care, Ronnie 

  • Right, I now have a Weetabix in front of me with loads of SS Milk - Today's challenge Slight smile

  • And? How did you manage? 
    You could update your blog with a photo of an empty bowl Wink

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Not Great, managed about 70%. Very bland, even with a sprinkling of sugar. Disappointed

  • Hi well done 70% is better than nothing. For  a while  we have to treat food  as fuel . You’ll get there in the meantime just keep trying different things. I’d one day you can’t eat it try again a week or so later. Insides of custard tarts I used to enjoy. Poached eggs as well if you can eat them. 
    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/