Have found the forums and chats useful as I’ve moved from diagnosis towards treatment, and thought it might be useful for me and others on a similar timeframe.
Had tonsil cancer 18 months ago. Had neck dissection and tors robotic surgery, was lucky and didn't need chemo or radiotherapy. I had a really sore throat for 3 weeks, opposite side to original surgery. Spoke to cns and they got me seen in clinic. Consultant...
Hi all , I finished treatment beginning of April for tonsil cancer which had spread to tongue and tissue surrounding tonsil. T4a n0 m0 . Had 1st post pet scan in july which showed uptake, was so upset at the time ,had an mri 4 weeks later and was told...
Hi all , been a while ,but i need ro know if anyone has any thoughts on PPI's ,ive been having nausea ( not being sick) for a few weeks ,Dr is thinking i have reflux so has prescribed lansoprazole. I just have an uneasy feeling in my stomach and gas ...
I know this seems a bit trivial after all we are going through or have been through. I had to postpone a trip away in summer to celebrate feeling better post treatment because my thyroid gave up the ghost. We are going this weekend now I'm feeling a...
Hello, my husband finished RT and CT 4 weeks ago for tonsil cancer (T4N1). I would say he hit rock bottom in Wk 3 at home. He’s better this week, eating little and often and supplementing with Fortysips. He’s not using his PEG but maintains flushing....
Hello So we've just got back from seeing the oncologist and he's said the tumor in my husband's throat as grown after 3 cycles of Pembro immunotherapy treatment he said this can happen before it gets smaller so treatment will continue for another 2...
Hi all. 33 sessions of radiotherapy for thyroid cancer finished in June. I am 42. Before starting I had hospital dental appointment to check if any of my teeth needs removing, etc. Everything was fine, no removals. I was given advice on dental...
Hi all. I'm 3 months from finishing my 33 sessions of radiotherapy for thyroid cancer. Can anyone who had head and neck radiotherapy share a thought about healing of the inside of the neck please? Basically I feel things happening inside of my neck...
Hi I have neck cancer, which spread to two nodes in chest and then ribs. I had two rounds of cisplatin and 5fu and cetux, where I had such awful side effects which resulted me in wheelchair and housebound except for hospital appointments. My team stopped...
