Hi
Almost 14 weeks post treatment now and feel like I have turned a massive corner this week.
Had my 12 week clinic last week. All looks OK apparently from the camera view, so request was sent for my PET CT scan. Told my surgeon I hadn't used PEG since 1st June and for a brief moment it looked hopeful that we might discuss removing it. Then he calculated my weight loss over the last 6 weeks and I got the telling off I expected. Believe me, it hasn't been for the lack of trying! Anyhow I made an appointment with my dietician and she has sent me more juices, shakes, soups, sachets, etc to try and bolster me back up ASAP. Half of them are hideous though!! I can taste and swallow fairly well now, aided by water if drier food. Texture is the problem, my tongue and roof of mouth still healing so far too much feels like lardy sawdust! Full fat milk and too much cream makes me feel sick, so until I can handle tomatoes again I've had to accept it will just be a bit of a battle. Had a call on the way back from clinic and my PET CT scan is booked for this Friday. My rheumatologist is happy I am having that too. Hope I don't have to wait until mid August for results, but have been warned that might be the case.
Had my first counselling session this week, thanks to Macmillan. Really useful and well timed with everything else going on. I saw my family for the first time 10 days ago, lots of hugs and tears to start. I managed 1/3 glass of champagne, not my favourite but was able to toast them all.
I am more or less painkiller free now. Just need codeine at night, but that is mainly for the arthritis in hands and elbows so it doesn't keep me awake. Gone back to using the Caphosol again as a little mouth soreness was creeping in, not had blisters on roof of mouth since. Less meds seems to have helped with the fog and fatigue, managing to drive on my own again now.
Went out for a cuppa and cake with a friend, was so good to laugh, gossip and catch up. Add to that the independence regained by driving myself there.
My other big step was that I went into school yesterday. Had my back to work meeting. Now back, wfh and popping in for a half day a week. Not expected to do full days and ok for naps. It was lovely to see everyone and be welcomed back so warmly. Although, having lost lots of weight and gone blonde it was hilarious watching the shock on people's faces when they realised it was me! I am looking deceptively well, so had to then explain that my body is still in a bad place and will probably take years to recover. I think they all expected me to be bald, had to show them my on-trend 'undercut' where I have stubble at the back of my neck. I guess that's one of the things, many of our scars are inside our bodies.
So, on the whole progress being made. Good days outnumbering the bad ones. Keeping everything crossed for Friday!
Take care, Ronnie
Hope you're doing well.
The funniest looks were from the sassy 6th form girls. I've always been the fat old frump. Lost 3 1/2 stone and gone blonde. The exchanges between them made me laugh!!
My phrase of the day yesterday was 'you've got to take the silver linings'. I still ache, feel rotten some days and can't eat what I want, but hell I look better than I have for years!! Maybe it's 7 months of being t-total? I hope not!!!
My phrase of the day yesterday was 'you've got to take the silver linings'. I still ache, feel rotten some days and can't eat what I want, but hell I look better than I have for years!!
Hell, yes the cancer diet. Wouldn’t recommend it though 
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I have lost NO weight. I know it's wrong but I am gutted 
Thought it would be guaranteed regardless of what you were eating!!! Ah well, guess I'll have to sort it the old fashioned way!!
Yep, doubt it will be as popular as Atkins and the like!!!
