Just heard from Head and Neck Team after my MRI and Pet scan last week. They want me to go in next week to have my tonsils removed and base of tongue biopsy. I am really scared now, does that mean I am going to loose my tongue. Nurse wasn’t very clear
No Debbie. They are simply going to biopsy the back of your tongue. Your tonsils are lymph nodes. There are also tiny lymph nodes at the back of your tongue so that is what they are checking. Try not to worry. I had a T2 tumour arising from those little nodes and they fixed me with radiotherapy.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Thank you Dan, I feel ashamed to say I burst into tears, especially when other people suffer so much more. I wasn’t told much by the nurse, so I am assuming the primary site is the tonsils. Everyone on here is wonderful, snd honestly cannot thank everyone enough
Hi Juliesss
It's a relief to speak to people who have gone through this. I was imagining my tongue being taken out, and never being able to talk or eat again. Which is pretty selfish when so many people are going through worse cases.
I know I keep repeating myself but I am grateful to you all x
Oh Debbie....of course you allowed to burst into tears. This is all so overwhelming and until you understand exactly what is going on and when everything is going to happen the uncertainty is killing. Other people's suffering is immaterial...just concentrate on yourself. Once your treatment plan is in place things become much easier. You have a goal and that is to get better
I had a tongue biopsy and was in and out the same day. My tongue was a bit bruised each side where I presume the surgeon pulled it out........ouch! but apart from that Paracetamol fixed things for a few days.
Having tonsils out is a bit more painful but I'm sure you'll get all the analgesia you need.
Best of luck
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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