Celebrating my first D-Day

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I feel that marking progress in our cancer treatment and the subsequent living with cancer is important.  As they have never found my primary and thus treated it I feel that I can't celebrate completing treatment as the watchful waiting still goes on - as it does for so many of us.

A year ago today I was told that, after the first biopsy was clear, the second more invasive biopsy of my lymph nodes determined cancer with HPV markers - probably tongue and tonsils.  Thus I've decided to mark my progress towards the 5 and 10 year survival points as my Diagnosis Day; D-Day. 

As a Group our survival statistics are good, but we are a small group so there will always be significant variation in those figures.  Some of you in the Group are on the wrongs side of the positive figures and my heart breaks for you; hoping that you come through your treatment and can live a wholesome life.

On this day I can reflect and be grateful to the NHS for the excellent treatment I have received.

A special mention goes to everyone who contributes to this site to help all those who are affected by head and neck cancers; not just patients, but friends and family.  That help has made a large, and very positive, difference to me.  Thank you!

A number of people have posted recently on their anniversaries and I do think it helps give positivity to those who are just starting their journeys that this cancer is survivable.  The treatment is tough and sometimes the long term effects do have an impact on your quality of life, but hopefully the end result is acceptable.

Onwards and upwards to my second D-Day!

  • Hi. PFJTHS  Well done on your D-day, I think it is important to mark these milestones on this journey we are all on, and if it helps those who are just starting out or along the way, that is even better. Just like you I am really grateful to the NHS, for what they have done for me, and are still there if I need them. All the best.

    Regards Ray.

  • Well done Peter. Thanks for posting your encouragement. A CUP must be even more of a challenge to live with than the rest of us with a definitive diagnosis. 
    Needless to say you have grasped the nettle and simply got on with it. 
    I celebrate my 2 years in late January. I had a dot tattoo for my radiotherapy and now nobody will remove it for me so my celebration will be to have it incorporated into a tattoo of a honey bee. 
    Roll on the years quickly but not quickly. What a strange situation to be in.... wishing the years away? 
    We have much to be grateful for and even in these trying times our NHS is largely doing us proud. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Peter well done in D day mine was 23 June 2018 so if I used that I would be 29 month now.One day at a time one step at a time the majority of us get there one way or another.Yes we are a small group who seem to get along well.

    Onwards and upwards Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Awe thanks for this lovely post, Peter, yes we should mark these milestones, mine milestone was on the 5th when i reach twelve years, the first 6 were bumpy at times but the second six have been very good but i never take my eye of the ball. The NHS saved my life many times over and have nothing but praise for the Drs, consultants, nurses, etc who achieve great results. Wishing you well with your continued recovery, best wishes,take care .

                                                                                                          Chris 

    Its sometimes not easy but its worth it ! 

    Community Champion Badge

  • Hi Peter

    Congratulations on the milestone you have reached. The same as you I have become really conscious how important it is to celebrate them and value each day that comes along.

    It is just over 7 years now since treatment for my first mouth cancer and it is just over one year since treatment for my second mouth cancer. This cancer was not a recurrence of my first cancer as it was on the other side of my mouth.

    I celebrate life now and no longer take it for granted. I have been enjoying every moment of my life since my treatments and have lots of things I still want to do.

    Congratulations to everyone on their milestones.

    Lyn

    Sophie66

  • Hi Peter. I'm at the beginning of your journey. I have cancer in neck origin unknown. I see the oncology team next Friday .I also see a gynscologidt next wed.. scans etc. . your post has given me such hope , having cancer is such a kicker anyway not knowing where it's lurking is an emotional roller coaster.  Great milestone for you...

  • Hi Peter,

    Such a great post. Thank you & congratulations on your milestone too. 
    I’m on my 3rd round of head & neck cancer but still here to tell the tale and I’m enjoying life. It’s different to my old life but we learn very quickly to adapt.
    This forum & other groups on the Macmillan site has been invaluable to me and I’m truly grateful to you all for supporting me when I was starting out in 2014 and so scared of the unknown & the continued support I get today. You can off load your deepest feelings to people that know exactly what you’re going through without burdening family & friends. Life is for living,making the most of what we have and being thankful to our wonderful NHS.

    Fi Blush

  • Lovely post Peter.  And of course you too contribute greatly to this site with your informed and well written posts.

    As you say, onwards and upwards.

    Linda x

  • Well done Peter. I suddenly realised that I have totally missed my 1 year milestone 8/11/20. Like you, I have an unknown primary and it has taken the shine off. That said, 1 year is reason to be greatful and perhaps if there wasn't the lockdown issues, I would have been raising a glass of wine somewhere.

    Piya10
  • Well done Remember your early postings where’s that year gone !

    onwards n upwards 

    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/