My cancer journey

Hi

Not a lot that I can say that will alleviate your concerns.  I think we have all been there to one degree or another and understand your feelings.

Here is a great place to vent any frustrations or fears as we will understand, and offer you the best advice we can from our own experiences.

To a great extent, for all of us, cancer never goes away.  Once there it remains a niggle chewing away at your conscious; even when you have the all clear.  It is how we cope with that niggle that helps us manage our lives.  I decided to accept that it was now part of being me; and a part that I just needed to keep a close eye on, but not let it take over my emotional wellbeing.  I do understand that not everyone can do that.

I hope you have great support from your family and friends.  My advice is tell them as it is and ask them not to beat around the bush when talking about your cancer with them. 

I would also trust in your clinical team to do the best for you.  Despite the challenges of Covid mine have been great.

That CT scan is going to be very important for you.  Here's hoping that it confirms your consultants view of what happening and you then have a good ongoing treatment plan.

Let us all know how you get on, and remember that this is an active group that supports the members of this "club" through their ups and downs.

Hi Not much I can add to what PFJTHS has said ,Agree  don’t hide anything back from family let them in and know how you are feeling. Come on here and have a rant we’ve all had issues and a problem shared is a problem halved .Even if we can’t give an answer it’s just knowing others are here. Do your   team know yiubare having problems sleeping ? Am sure they could help with maybe a mild sleeping pill.

keep in touch don’t bottle anything up.

Hazel x

Hi Clzgw04

Sorry you’ve had to cope with a recurrence. Nivolumab is a targeted immunotherapy as you probably know and it’s good you’ve been given this. There have been some startling responses to this treatment so keep the faith. 
The good  news is that your oncologist is as sure as he can be that the tumour hasn’t spread but even if it had the immunotherapy will take care of it. 
I wish you peace and strength to cope and keep my fingers crossed for your recovery 

Dani 

Hi. So sorry that you find yourself in this situation, and yes, it plays havoc with a natural instinct to survive, made even harder with Covid added stress. I am 10 months post SCC neck lump treatment but, had breast cancer 25 years ago (glutten for punishment). The GP gave me sleeping pills then to help calm me in the initial days. I can honestly say that the C word in my head has not always gone away in all this time but, the sheer terror I felt initially, reduced such a lot once I had the Team behind me and time after time, I got given an "all clear". The Team do a lot to keep you positive and that helps tremendously. Stay positive and all the best.

Tricia