12 Months On

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Hi All

We realised  that it was 12 months yesterday when hubby rang the bell at the end of his Radio/ Chemo treatment.  Seems much longer than that but at same time no time at all.

It is now seven weeks since hubby's surgery and the fatigue is not abating.  The surgeon has classed it as an 'Extended Radical Neck Dissection'.  We know that a full sheet of neck muscle, 30-40 lymph nodes, external jugular vein, various nerves were all removed so quite extensive surgery.  I think that given all that his body has gone through it is not surprising that he has fatigue.  However he has been told there is residual cancer beyond the scope of surgery and that it is incurable should we be concerned?

Has anyone else had an extended radical neck dissection and if so how long did it take to get over the fatigue?

Regards

Margaret

  • Hi - I had neck dissection (twice), but nowhere as extensive as your husband.  I just had all the lymph nodes and many saliva glands from the RHS removed.

    A friend, who is an A&E doctor, advised me that the current medical opinion is that it takes one month to fully recover from the anaesthetic for each hour that you are under.  And that is aside from any other issues.  I imagine that the op was quite long and therefore he is probably still in the post anaesthetic phase.

    I found that getting out for exercise (walking the dog) each day helped me massively in recovery.  Maybe there is something similar that will get the blood flowing to clean out the tissue??

    I had some issues with my arm after surgery - nerve damage - and the physio was excellent at helping me recover a lot of movement.  From what you describe I suspect your husband is going to need physio as well, but it does seriously help the situation.

    I am sorry, but I can't offer and experience of the residual cancer.

    Peter
    See my profile for more details of my convoluted journey
  • Good evening Margaret and hubby, yes i agree seven weeks is still early and i would say give him about six months where he should see a big change as he has certainly had a lot of work done,i had a full neck dissection where nerves and muscles had to be worked on to as they got damaged, slowly and surely it all came together and I made a full recovery with no outstanding aches or groans. Im sure that because they know about residual cancer they will keep a close eye on and treat it accordingly, i believe there a few who are in this situation and they have kept on top of the cancer without it getting worse. Hope he will start to feel better soon and maybe 3 months will be a good time to compare any progress. Best wishes to you and your husband , take care. 

                                                                                           Chris x

    Its sometimes not easy but its worth it ! 

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  • Hi Margaret 

    Thjnk Chris has answered your question, hope it helps, fatigue is debilitating sending hugs Hazel let us know  How things progress ? Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

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  • FormerMember
    FormerMember

    Hope he feels better soon x