So went to to see the ENT yesterday I haven't seen him since I was diagnosed back in March, he put the camera up my nose & and told me everything is looking good.I asked him if it was normal to feel the cold he said this is the chemotherapy it messes your sircilation up and you will always be like this.He asked me how i"m eating and swallowing I told him "I have trouble with bread,meat,cheese stodgy foods really" he replied "this is normal with head and neck cancer patients but will get better" I also asked him about my deafness they don't like to do anything for about a year then he might consider a grommit.I then had a chat with the speech therapist & dietician again they are pleased with how well im doing they did say i have to start my jaw exercises again as my mouth isnot opening wide enough.
Then I visited the dreaded dentist i was not looking forward to this,but I was surprised my teeth are fine and they are signing me of and i can now go back to my own dentist,so im going to my dentist on Thursday for a good old clean.The dentist did ask me what I had sugar wise like fizzy drinks,alchol,do I smoke,how many sugars do I have in a hot drink,do I eat chocolate or sweets etc..? I answered No to all these questions,I did tell her I have 1 cup of coffee a day no sugar in the afternoon with 2 biscuits,she told me I would be best to cut these out,I be honest i wasn't pleased,I don't drink,smoke,I struggle with chocolate so don't bother eating it now,I have 1 hot drink a day,I can't sunbathe,I had 6 teeth out,I'm deaf,I've lost my ummff,and i'd love a cheese and onion batch but I struggle with cheese,and what I'd give to have a sizzling rump steak,all I do is drink drink drink bloody water, but i totally understand the dentist as we have to be more aware of our mouth & teeth as we have lost our saliva but i just got a lititle mad when I came out.
This cancer as took mostly everything away that I enjoy and it's not taking my 2 biscuits away.RANT OVER
Good luck and Good health.
Nicola xxx
My dentist told me to keep away from sugar but my dietician told me to have sugar (though I can't have much as I get a burning in the throat) still can't do cheese but can if melted (cheese on toast) meat I can manage if freshly done and not cooked to death with gravy some breads I can just manage but usually lightly toast it with loads of butter (dietician is happy for me to eat loads of butter and cream) then it is slow but doable, also soft cheese is ok, potatoes and beans are a no no though roast (not to thick) with gravy is ok just.
Hi Nicola
Sending you a virtual hug as I can completely sympathise about the biscuits. You do need to try to avoid sugary things as we are more prone to dental problems because of the dry mouth. However I am allowed biscuits. I am even encouraged to eat biscuits to try to maintain my weight. I usually dunk my biscuits in tea to help them down. All I had to do was promise my Dentist that I'll always clean my teeth properly afterwards.
Chocolate can be a problem but I was determined to find a solution. I used to melt it a little bit and mix it in with vanilla ice cream. If I had a box of chocolates I would fix one to a cocktail stick and then dip it in plain yogurt. I'd have this as my pudding as I'd be cleaning my teeth after dinner.
As you say recovering from cancer can take away a lot of our pleasures. I found my team were initially very strict over things like drinking alcohol and eating anything sugary. However a little bit of negotiation is usually possible! xx
I totally feel your frustration and I have heard a million times, at least your alive!! But I get it, it takes away the little things we’ve always taken for granted.....! I’m in the same kind of mood as you today. Pissed off I can’t eat what I like and my mouth is constantly dry, I think of nothing else. It’s so uncomfortable. Can’t eat, cant talk and can’t stop worrying this will last forever!
That's my plan carry on and have my 2 biscuits then brush my teeth after.
Good luck to you xxx
Please dont worry it does get better we have to take each day as comes and there is going to be good days and bad days,yesterday was a bad day for me, today your having a bad day.I too get very frustrated I can't eat this and that and the water bottle is at my side 24hrs a day.But honestly it does get better,I cant say its going to last forever as i just dont know but all I can say it does get easier it's just a long slow recovery which needs a lot of patience.
Good luck and Good health
Nicola xxx
Hi Nicola
Firstly, great news after your appt with ENT that all is clear and that the dentist has signed you off.
I was about to reply and suggest that a little indulgence when so many other things are out of the question is a good thing but to ensure you keep your mouth as clean as possible afterwards but I see you've already thought of that! Great minds and all that...
Good luck with your continuing recovery.
Linda
Sweet things are fine if eaten with food, else as you say . . a good mouth and tooth clean afterwards.
Watch out for anything acidic . . . jams, fruits, sauces and vinegar's etc . . . rinse you mouth afterwards but wait at least 45 minutes before brushing to let the enamel re-harden.
You're probably aware anyway as there are guys on this site that know a lot more than I'll ever know
All the best
Jon
An update . . . which I should have posted a year ago . . .
To protect damaged enamel after eating anything slightly acidic we should nibble on a little bit of plain Cheddar (capital ?) else wait 40 or more minutes before cleaning teeth. The cheese neutralises the mouths' PH and the wait is to allow the enamel to re-harden.
This has been said to me by both my hospital dental guys and my own specialist dentist (who costs me a fortune !) . . . so I assume this to be current thinking and sound advice.
Another excuse to eat cheese
Better than a sodium bicarbonate rinse
Useful tip to make sure you wait 30/40 minutes to brush teeth
Another thing you could consider is brushing before breakfast so that breakfast doesn’t start working on overnight plaque. After you’ve eaten floss and/or interdental brush and sloosh with fluoride mouthwash
Glad you are well
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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