Hpv tonsil cancer diagnosis

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Hi, just wanted to introduce myself, I’m 69 just been diagnosed with hpv positive tonsil cancer and due to start radiotherapy in a few weeks, got see a dentist next Tuesday get my teeth checked .

Have to say feeling a little shell shocked and terrified of what I’m about to go through.

  • A warm welcome from us all.  No denying it's going to be a tough gig but stay with us and we will help you get through this and into recovery. 

    Peter
    See my profile for more details of my convoluted journey
  • Hiya please stick around, you’re now with people in the same boat and there’s some good stuff on this forum. think it would be unusual if I wasn’t taken aback by my initial diagnosis and the outline of the subsequent treatment plan. This was similar to yours but they clagged on chemotherapy as well. Over two years clear now with few discernible side effects. It was equally important for me, along with the expected side effects to look after my mental health. To that end I tried to get a little fitter and a little fatter lol before treatment. I kept occupied, this helped a little with becoming self-forgetting. I also kept copious notes on my iPad, appointments etc along with relevant uplifting stuff from this platform. Everyone’s different my friend but at the end of it all it boiled down to realising that a lot of things were outside of my control. Accepting which things which were (keeping every appointment and trusting my team) and trying to keep my eye on the ball and ignoring things which weren’t conducive to my peace of mind. Everyone has an opinion, the opinion of the professionals were the ones I took note of. There’s light at the end of the proverbial tunnel…One Day at a Time

  • Hi  

    This  is a good place to start. 
    Have a read through. It will give you questions to ask 

     Helpful tips for those about to start treatment.. 

    I had six weeks of RT nearly eight years ago at about your age. Have a look at my blog here.  Today my coffee tastes like Christmas in Costa Rica

    Its being transcribed from my Wordpress source so isn’t quite complete yet but you’ll get the gist 

    I

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Hi I’m 8 years post chemo radiotherapy for hpv driven tonsil cancer. 61 when diagnosed living good life now. Treatments hard but if I can do it anyone can. There’s a link to a webinar I’ve done with my oncologist on diagnosis below. Any question's just ask.

    Hazel . 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis.