Newly diagnosed tongue cancer

Hi Dave

sorry to see you here but you’re in the right place for help and support 

I’m Dani, one if the Cimmunity Champs here and I’m nearly eight years clear of tongue cancer  

I have a blog you can look through 

community.macmillan.org.uk/.../today-my-coffee-tastes-like-christmas-in-costa-rica

Hi and welcome from me.  There are lots of people who have had the same diagnosis as you - I am one of them, but with a rather unusual journey.  Hold onto the fact that this cancer, although treatment is tough, is eminently curable.  Have a look at my profile for some info.  Stay with us and ask as many questions as you like once you have got your head around this.

Hi,YorkshireDave ,Yes mate finished treatment in January given all clear in June ,6 weeks Radiotherapy 30 sessions and 6 chemo at Castlehill in Hull im from Yorkshire also but now iving in Lincolnshire .Have they mentioned a feeding tube to you this is essential as swallowing becomes difficult or impossible in my case so had a tube fitted in my stomach so i can pump liquid food and water into my body .You will probably need strong painkillers ie Morphine discuss this with your SCN to make sure its available when you need it .Laxatives will probably be needed also as opiates like co codamol and morphine stop you going .Make sure you know who your team is and how you can get in touch with if need be .Sore throat and mouth ulcers were a problem for me you may be ok but if need be rinse regular with Salt and Bicarb in warm water it does help .Any questions post on here and one of us will advise if we can .Good luck and keep off Google if you can .

YorkshireDave said:

share their experience

There is a useful thread here too

community.macmillan.org.uk/.../helpful-tips-for-those-about-to-start-treatment

Hi,

Thanks for this. Haven't discussed any treatment yet, as i am waiting for my MRI and PET scan. Hopefully having these in the next week or so. 

Let us know how you get on 

Thanks for this. Some useful information for me