My partner has just had surgery

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Hello

My partner had a hemi glossectomy and bilateral neck dissection and flap reconstruction two weeks ago, he came out of hospital to stay with me last night. 

He has a stomach feeding tube becaise he can't swallow. Saliva is a big problem for him at the moment causing a lot of distress. His speech is also very affected.

He'll be starting radiotherapy in a few weeks. We hope after that he can learn to eat food again and work on his speech. 

I'm trying to be strong but we are both feeling dazed, scared and a bit alone right now, but I guess that's normal.

Just wanted to say hello and connect with other people who are going through the same thing x

  • Hi Natalie welcome to the group. It's very soon after his operation and he will need time to recover from it. Has he started to use his feeding tube yet? If not, you could ask his team about using it if he can't eat. All the things you have mentioned will improve it just takes time. Stick with us and ask any questions you have.

    Ray.

  • Thankyou, yes, he's using his feeding tube and his dietician has booked in to see him soon so that's good.

    That's reassuring to know thos things will improve with time. The SALT team have indicated that he'll do more speech and swallowing therapy after the radiotherapy as I know the side effects if that may halt things. 

    It seems silly but it feels so hard that talking and eating and drinking have been taken away for now, and the uncertainty of how much it will improve of not feels really scary right now.

    But we will just keep focusing on getting through each day. 

  • Just take things one day at a time, it's a very challenging treatment but it's doable and gives very high rates of cure. Look at every day as a day nearer recovery.

    Ray.