Hi

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Just waiting to introduce myself. I'm Den and I'm 2 weeks into treatment for Oropharyngeal Cancer and feeling very scared about the next few weeks 

  • Hi Den and welcome

    Two weeks in and you'll be feeling the effects of the RT for sure...a prickly throat?

    Are you having chemotherapy too? Do you have a feeding tube in place?

    The side effects do ramp up from now but just make sure your RT team know how you feel every day and take your pain killers before pain kicks in and by the clock. Stick around, ask anything and share your feelings with us. We are all here to help and somebody somewhere has an answer to any of your questions

    It's all doable and you'll get there

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Oh and it really helps us if you can put up a quick bio in your profile

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Sorry....forgot this one

    We have a thread on helpful tips so have a look

    Helpful Tips

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Yes I've had 1 Chemo at the start of week 1 and another duo at the start of week 3. Throat is just beginning to break down and saliva drying up. PEG is in place. Starting regular pain relief from today. Emotionally I feel like I'm on a rollercoaster. Found myself crying in the dark for the first time in the early hours 

  • Hi Denk so sorry that you are going through this, its terrible but you do come out the other side. The emotional side is just as difficult as the practical side. Your brain goes into protection mode and it sees danger everywhere.  I use to cry too at night. You can ask your team to see a counsellor who can help you cope. Take it 1 step at a time. And this is a brilliant forum

  • Found myself crying in the dark for the first time in the early hours 

    I don’t know what your situation is but my husband was my rock through all this. He kept me fed and did all my pain meds during rhe times I gave up. I had a few meltdowns in the middle of the night in the bathroom but felt instantly better afterwards. You need the release. Keeping “strong” whatever that means is nonsense. 
    I spoke to another member just yesterday about feelings. We are all different so you do what’s right for you but Cancer taught me that you cannot change some things but you can change how you cope with them. 
    This won’t last forever. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
    • Thank you. It's good to know that there is a community here to help me through the darkest hours. 
  • Thank you Beesuit. I am lucky enough have a really good support network but my partner prefers to take an ostrich approach to my diagnosis which sometimes makes me feel I'm facing this alone. Especially when my brain starts racing in the middle of the night. I take your point about releasing the keeping strong attitude.

  • Being  scared  is a situation that we all found ourselves in, things do calm down after we settle into the treatment regime...a lot of tests, procedures, info to take in...it can be/is very overwhelming but this is a great forum for reassurance, sound advice and support...stay with us...ask anything 24/7...keep the site updated with you progress ...try to avoid Dr Google.

    Michael

  • Good advice Michael. I guess I'm in expect the worse and hope for the best mode going forward but I know deep down I can get through this and it's a huge relief talking to others who have been or are currently on the same journey