Just waiting to introduce myself. I'm Den and I'm 2 weeks into treatment for Oropharyngeal Cancer and feeling very scared about the next few weeks
Hi Den and welcome
Two weeks in and you'll be feeling the effects of the RT for sure...a prickly throat?
Are you having chemotherapy too? Do you have a feeding tube in place?
The side effects do ramp up from now but just make sure your RT team know how you feel every day and take your pain killers before pain kicks in and by the clock. Stick around, ask anything and share your feelings with us. We are all here to help and somebody somewhere has an answer to any of your questions
It's all doable and you'll get there
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Oh and it really helps us if you can put up a quick bio in your profile
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Yes I've had 1 Chemo at the start of week 1 and another duo at the start of week 3. Throat is just beginning to break down and saliva drying up. PEG is in place. Starting regular pain relief from today. Emotionally I feel like I'm on a rollercoaster. Found myself crying in the dark for the first time in the early hours
Hi Denk so sorry that you are going through this, its terrible but you do come out the other side. The emotional side is just as difficult as the practical side. Your brain goes into protection mode and it sees danger everywhere. I use to cry too at night. You can ask your team to see a counsellor who can help you cope. Take it 1 step at a time. And this is a brilliant forum
Found myself crying in the dark for the first time in the early hours
I don’t know what your situation is but my husband was my rock through all this. He kept me fed and did all my pain meds during rhe times I gave up. I had a few meltdowns in the middle of the night in the bathroom but felt instantly better afterwards. You need the release. Keeping “strong” whatever that means is nonsense.
I spoke to another member just yesterday about feelings. We are all different so you do what’s right for you but Cancer taught me that you cannot change some things but you can change how you cope with them.
This won’t last forever.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Thank you Beesuit. I am lucky enough have a really good support network but my partner prefers to take an ostrich approach to my diagnosis which sometimes makes me feel I'm facing this alone. Especially when my brain starts racing in the middle of the night. I take your point about releasing the keeping strong attitude.
Being scared is a situation that we all found ourselves in, things do calm down after we settle into the treatment regime...a lot of tests, procedures, info to take in...it can be/is very overwhelming but this is a great forum for reassurance, sound advice and support...stay with us...ask anything 24/7...keep the site updated with you progress ...try to avoid Dr Google.
Michael
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