Hi,
I just wanted to put my own experience out there and see if anyone can offer any advice. I am a male aged 59 I was diagnosed with Tonsil cancer in Sept 2025, I underwent Chemoradiation 5 Chemo and 35 Radiation finishing Mid January 2026. Weight dropped from 12 stone to 10 stone. Was in hospital for last 3 weeks of Radiation. Once home was eating soft foods, mouth much smaller so Trismus was in place. Started suffering bad headaches and struggled to eat food so lost more weight. Was admitted to hospital mid May 2026 for some TLC and to help me gain weight. It was then found that I had a hole in the back of my mouth around the size of a golf ball in diameter id say I also had a very sore shoulder and stiff neck which I think was Fibrosis of the neck from Radiotheraphy. Apparently once I ate food orally it was tracking over into the neck via the Hole in my mouth and infecting it with any bacteria that was in the food. I was then put on a Rig and told to not to eat or drink anything orally to the infection could be cured which was done using Antibiotics. I have now being told I need to have a free flat op to fix the hole in my mouth. Im not sure if this will help the shoulder pain subside. The Oral mucous is now worse then it was even when undergoing Radiotheraphy. Just wondering if any members have had similar experiences and any advice.
