Yet another Newbie

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T4 N2 M0

I've recently (May 2026) been diagnosed with oropharyngel cancer at the base of my tongue having first noticed a lump in my neck back in April. So having had my tonsillectomy May 15th and Blood tests, PET Scans, MRI, CT Scans and had biopsies three times, (twice at the base of my tongue as the first set were inconclusive) I finally got a diagnosis for the prime site at the base left and centre of my tongue (sorry if that's wrong - I'm new to all the jargon too).

I was given reassurances that this was the only site, well my tongue and the lymph node in my neck that is, and now have a treatment plan in place which started on Friday 10th July with the removal of 3 teeth (Oh what fun that isnt. Three teeth already removed and two more yet to be taken out).

Then out of left field I take phone call from the Urology Dept, telling me that the ENT department had referred me to them as an abnormality has shown up on my PET scan from 28th April an that they need to investigate further.

Talk about throw a lobbing hand grenade my way with the pin already pulled. So I'm now scrabbling around feeling as if I'm back in limbo land trying to find out more as I'm not sure what the implications will be until i get the blood test results back. And to be honest I dreading the result....

  • Hi Allen ,welcome to the team ,my diagnosis was same as yours and im now clear 8 months later ,try not to worry about the PET scan results mine showed some shadows on my jaw which is probably damage caused by the Radiotherapy I am still waiting for an appointment to confirm but i feel confident its not the big C .Not everything that shows on scans are cancer you are bound to be concerned but im sure you will be ok any questions ask away, there are plenty of people on here who will be able to advise .

  • Hi try not to worry pet ct scans do show any inflammation as well that’s in your body. Deal with the hnc first   I am 8  years post treatment living a good life. 
    welcome to the club none of us wanted to join. Remember hnc do respond well to  treatment , it’s hard but if I can do it anyone can 

    Ask any questions nothing is too silly 

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  7years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/