Dry mouth after 3 years

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Any advice on how to manage dry mouth. I am 3 year after tongue cancer surgery and radiotherapy. 

My mouth has become especially dry and hard to manage in the hear. 

Any advice would be welcome 

  • Hi. Can you chew gum? It’s my absolute go to and works a treat. 
    At night I tend to sleep with my mouth open so I have a squirt of oralieve dry mouth get, pop a xylimelt in and tape my mouth. That gives me a largely unbroken night’s sleep

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • I'm also 3 years out after Chemoradio for head and neck cancer...dry mouth is still a problem, probably our 'new normal', some days are worse than others, chewing gum containing xylitol helps, cheap from Aldi/Lidl, Biotene gel, plenty of hydration, Coconut water is an excellent, naturally hydrating choice for dry mouth...

    Michael

  • Hi dani, 

    I have trouble chewing gum as I had belly's palsy on my good side in the Nov after my operation and it hasn't gone back to normal. Plus all my bottom left teeth were removed. 

    I'll try your tip at night though thank you 

    Mandy 

  • Can you try Salivix pastilles? They stimulate the saliva too. I used to use them and got them on prescription from my GP. You can get them OTC. I have loads of boxes if you’d like me to send you one to try? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • No I've not heard of those I'll try that to

    Thank you 

  • I can only add try a small spray bottle of water to keep your 

    mouth fresh and moist

    Chewing gum day for mei break it into small pieces and tend to stick 

    it up on my too gum like I do with xyimelts at  night. Boots also do a small handbag size dry mouth spray. 

    im 8 years out spend 5 months in Spain the heat doesn’t help but im used to it now. Sat typing this and its 38 degrees at 2130 I dint drink any alcohol but lots if water. 
    tea coffee alcohol can dry you out even more 

    I tend to have coffee  early morning. 


    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  7years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/