Tongue cancer

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Hi my name is Geoff, I had my operation last Nov.’25. I’m on a feeding tube not being able to swallow. I am waiting for a videofleuroscopy! They have told me I will probably need the tube for life, has anyone else been in same position. 
I had tonsil cancer 14 years ago & had RT & Chemo. so I couldn’t have it again. But the RT has done a lot of damage they’ve told me. 

  • Hi Geoff,  there are a few on here that are fully tube fed.  I am sure someone will be along soon to chat regarding the situation you find yourself in now.

    Peter
    See my profile for more details of my convoluted journey
  • Just reading your message Geoff! Sorry I ´m not able to help but all the best 

    take care 

    viv

  •   can you offer any words to Geoff re permanent peg feeds 

    hazel xx 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  7years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  •  Good evening Geoff, im in the same situation where i am reliant on my feeding tube(PEG) because I cannot swallow properly due to damage from RT and operations. I can, however i can swallow thin liquids like water, coffee, tea, etc. It does take quite a bit of time to adjust to not being able to eat normally, but using the PEG becomes quite simple after a few months once you get into a routine. The actual PEG is easy to maintain, and it will be explained to you by the dietitian or PEG nurse. The PEG nurse will also come and change the tube every few months. Mine has been in since 2009 and has not caused me any issues. Please feel free to contact me if you need further help. all the best.

                                                            Chris

    Its sometimes not easy but its worth it ! 

    Community Champion Badge

  • Hello Chris, have you still got a lot of mucous, if not how long since it stopped & what did you find helped , Geoff