New to this group

Hi ..the oncology team know their stuff, at my first ENT appointment the consultant said that it was head and neck cancer, he was spot on, things moved quickly from there, Chemoradiotherapy was my weapon to fight the cancer, not an easy treatment but highly effective....

The first biopsies taken were inconclusive and a second lot had to be done... but the cancer confirmation was not long in coming.

It's over three years since CRT finished... doing well now... been on a few sunshine breaks, play some sports, life adjusts to our new normal... not bad at all.

Good luck.

Hi and a warm welcome from me.  Have a look at my profile for a similar story.  I am now 6 1/2 years post diagnosis and living a good life.  The treatment is brutal and the recover tough, but after then most of us go on to have a good quality of life.

These cancers respond well to the treatment with a "cure" rate around 90%.

Stay with us and if your husband feels like it then encourage him to join as well.  We are friendly and have a wealth of knowledge and experience to help.  We have patients, survivors and family members on here so there is always someone with a similar perspective to help you along the path.

Hi there, I’ve been you …. I was my husbands carer. Scary times my lovely. Stay with us, I wish I’d found this forum at the beginning of the diagnosis rather than during recovery. We’re a very supportive, friendly bunch. Any questions, worries … feel free to ask/share.

Love and hugs xx

Hi welcome to the club I’m 8 years post treatment chemo radiotherapy for h p v  driven tonsil cancer. Ask %any questions  were a small friendly group. Well done on alost 5= years on your anal  cancer .hnx cancers do respond very well to treatment treatments hard but if I can do it anyone can. 

there’s a tried and trusted protocol the mdt will plan his treatment as you’ll know 

a few weeks wait won’t make a huge difference I had lump in y neck found whilst in Spain on holiday thought I had pulled a muscle waited al ost 3 months but all was Orwell here I am. 

hazel xx

Hi Hamfan21 

Welcome from me too

Squamous cell carcinoma in the tonsils is invariably driven by an old Human Papilloma Virus (HPV)  infection. This cancer is very sensitive to radiation and cure rates are high in the order of 90% plus. The pathologist would have tested for this.

The treatment is pants but it's doable so stay with us for support. There's plenty here and there are lots of well survivors to lend a hand practically and a shoulder to cry on.

Have a look at this thread about Helpful Treatment Tips while you wait.

Have a look at Hazel's blog and mine, and Peter's profile. We are all different but all have got through this and are living life to the full.

PS

I had a look through your past posts...I hope you don't mind. You've been through the mill.

We will all try to help as much as we can. Hugs

Thank you all so much for your kind replies. 

Update. We saw the consultant today as the MDT was held on Tuesday.  Primary tumour was found in the right tonsil which was removed when both came out. 2 lymph nodes involved but no metastatis. - good news. 

Surgery had been discussed as a possibility but MDT decided radiotherapy will be best route as non invasive and primary tumour has gone. It's HPV+ and told that helps with radiotherapy as it will respond better. 

Next steps- see oncologist and discuss the treatment plan, etc. I know how long this takes, but after his planning etc I think it will be into late August before starting.  Chemo was questioned and CNS said it may well be likly but the oncologist will obviously tell us. 

I don't know if we're burying our heads a bit but came away feeling positive, but our way of coping is laughing at the situation (after we did the sad stuff the other week) and knowing we're in safe hands. I've read so many success stories on here. 

We're just pleased we know what we're going to have ahead of us. It's going to be hard,

Hi once you know what you’re dealing with everything seems to be clearer. Chemo radiotherapy is the gold standard treatment for oropharyngheal cancers with lymph node involvement. My team mdt was 22 june 2018

sse oncology that afternoon treatment started 12 July. I was at Leeds Denver centre they do have around 12-14,machines. On other hand I kniw people who had to wait many weeks. So keep  busy eat  your favourite  oods and keep popping on here we’re here to help. You will he let bust with various appointments soon   Yes hpv tumours do respond well to radiotherapy. 

• best wishes Hazel x