Hi, I've joined this forum as my husband as just been given a diagnosis of cancer. Thinking it was a cyst, he'd had FNA, ultrasound. The women doing it was convinced it was 'just a cyst' The biopsies were inconclusive with what was drawn out of it so followed with PET CT and MRI, pendonoscopy with tonsils removed and multiple biopsies. We don't have a treatment plan (histology report missed the MDT deadline by half an hr) but we'll know in a few weeks. No staging and consultant couldn't answer some questions due to wanting to have had the MDT first. He said squamous cell carcinoma was found in tonsils, it's early stages and he talked of surgery and/radiotherapy but nothing set in stone. Has anyone had anything similar and what was your journey. Just looking for hope. We can't believe this has happened to us, I am at my 5 year mark from anal cancer, I know what's ahead in some respect but obviously it's a completely different cancer.
Thank you
Hi ..the oncology team know their stuff, at my first ENT appointment the consultant said that it was head and neck cancer, he was spot on, things moved quickly from there, Chemoradiotherapy was my weapon to fight the cancer, not an easy treatment but highly effective....
The first biopsies taken were inconclusive and a second lot had to be done... but the cancer confirmation was not long in coming.
It's over three years since CRT finished... doing well now... been on a few sunshine breaks, play some sports, life adjusts to our new normal... not bad at all.
Good luck.
Michael
Hi and a warm welcome from me. Have a look at my profile for a similar story. I am now 6 1/2 years post diagnosis and living a good life. The treatment is brutal and the recover tough, but after then most of us go on to have a good quality of life.
These cancers respond well to the treatment with a "cure" rate around 90%.
Stay with us and if your husband feels like it then encourage him to join as well. We are friendly and have a wealth of knowledge and experience to help. We have patients, survivors and family members on here so there is always someone with a similar perspective to help you along the path.
Hi there, I’ve been you …. I was my husbands carer. Scary times my lovely. Stay with us, I wish I’d found this forum at the beginning of the diagnosis rather than during recovery. We’re a very supportive, friendly bunch. Any questions, worries … feel free to ask/share.
Love and hugs xx
Hi welcome to the club I’m 8 years post treatment chemo radiotherapy for h p v driven tonsil cancer. Ask %any questions were a small friendly group. Well done on alost 5= years on your anal cancer .hnx cancers do respond very well to treatment treatments hard but if I can do it anyone can.
there’s a tried and trusted protocol the mdt will plan his treatment as you’ll know
a few weeks wait won’t make a huge difference I had lump in y neck found whilst in Spain on holiday thought I had pulled a muscle waited al ost 3 months but all was Orwell here I am.
hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 7years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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