Non-Intestinal Adenocarcinoma Nose cancer

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Hi all, 

Diagnosed with this on Friday. Surgery soon. Then a break and radiotherapy for 6 weeks. If anyone has any advice and tips on this rare one, it would be much appreciated. I'm 56 and seven months post total hip replacement. Suffered with a blocked nose and bleeding for 6 months, then casually went to see the doc and got accelerated though cat scans, MRI's, biopsies, the works.Total random diagnosis. Not in my family and no lifestyle indicators to lead here. Can't help but think about the MRNA covid vaccines, but too late for that now.

  • Hi  

    I am sorry you are facing treatment for what sounds like a rare cancer. I don’t have this experience but hope someone will come along soon who has. It’s good that they seem to have got on top of the investigations very quickly. Unfortunately a lot of cancers are just random - cells divide all the time and sometimes that goes wrong. The older we get, the more likely it is that we will have a cancer diagnosis at some time in our life. 

    You reference mRNA Covid vaccines. These have been an absolute life saver world wide. There is misinformation around but absolutely no medical evidence that they cause cancer. In fact mRNA is a very promising avenue in cancer research. There are multiple medical trials underway on mRNA vaccines for multiple types of cancer. These vaccines work by delivering instructions that prompt the body’s cells to make specific proteins. This process teaches the immune system how to recognise and attack those proteins. In cancer research, scientists can design vaccines that train the immune system to find tumour cells and kill them without harming healthy cells. I can’t help but worry that misinformation will somehow harm funding for these really important developments. I would certainly hope not. 

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  • Hi Wilbur. Sorry nobody with any info has replied. 
    I can point you to two links that might be helpful

    The first is a search for adenocarcinoma in the head and neck cancer section

     

    https://community.macmillan.org.uk/search?q=Adenocarcinoma#smpq=Adenocarcinoma&serpq=Adenocarcinoma&serp=1&serpgroup=100

    The second is a link to a long running thread on nose cancer. Some of the people there are still getting forum notifications so if you post there you might get a reply. 

    https://community.macmillan.org.uk/cancer_types/head-neck-cancer-forum/f/updates/224443/update---cancer-of-the-nose-and-upper-lip/1755826#1755826

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Tbh the science isn't settled on MRNA vaccines as science never is. Especially as the proper name would be experimental gene therapy, rather than the more comforting "vaccine". We could be having this conversation about the link between cancer and cigarettes in the 1980's on the basis that "Nothing's been proven." Misinformation translates to healthy skepticism in my book.

  • The medical profession would disagree. mRNA does not alter DNA, it is not a gene therapy by definition, and vaccines prevent disease rather than treat underlying genetic disorders. 

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    I am a Macmillan volunteer.

    I have metastatic Triple Negative Breast Cancer, in remission

  • Tbh, I didn't sign up to this website to debate covid vaccines. I just hope I get through this horror show.

    The whole planet didn't need radio and chemo to prevent cancer in the same way the whole planet didn't need to be injected with an unproven therapy to prevent a virus which was largely harmless outside of the aged and those with significant comorbidities. I could have done without it.

  • I hope you get through the horror show too. Wishing you all the best. 

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    I am a Macmillan volunteer.

    I have metastatic Triple Negative Breast Cancer, in remission

  • Stay with us Wilbur

    No matter what the cause there are lots of people to help you through the coming weeks and months

    There is a very useful thread about tips for folk getting RT and CRT HERE

    I read that along with long term exposure to dust and irritants HPV has been linked to nasal cancer. I should imagine the pathologist has tested for the virus 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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