Tongue cancer 5 years on...

Hi Wonderfulworld. What a great user name. I love that song in fact it is my favourite. Unfortunately side effects are part of our treatment and something that we have to continue to deal with every day. I had jaw cancer so not the same as you but I too have ongoing side effects that will be with me for the rest of my life. It has become my 'new normal'. As time has gone on I have become less concerned about a cancer return although it is still in the back of my mind. I decided that to spend time worrying about it was not good for my mental health so became involved in quite a few different activities that I enjoy. I am luckily retired so have the luxury of time to do this. I find that being busy with the things I enjoy doing does not give me time to think about cancer. I am sure that if you have concerns about any changes in your health that your medical team will be able to reassure you. If you have been discharged and now are in the hands of your G.P. then I am sure that they will be able to check on things and re-refer you if necessary. Your medical team would not have discharged you if they were not happy with your progress. Don't waste your life worrying about the 'what ifs' and miss out on all the great things that life can still bring you. 

Sending you my best wishes

Lyn

Hi Wonderfulworld and welcome to our Community. Well done on the 5 years. It’s not plain sailing is it but my rule of thumb is to do all my exercises to ward off fibrosis, be rigorous with my oral hygiene ( no snacking, brush with high fluoride toothpaste, 3 monthly fluoride varnish and twice yearly visits to dentist ) and report anything new that lasts longer than three weeks  

I check myself thoroughly every month 

Wonderfulworld said:

Tingling numbness along that side of the tongue 3/10

This I do have. I’ve got used to it. It’s neuropathic and not likely to improve. 
I have been seen once after my five years with a tongue ulcer. 

Thats so kind , helpful and very reassuring. 

Let's keep in touch 

Thank you 

Many thanks

Some great information there which helps to understand my own position without that dark feeling of isolation.

I love walking so will keep busy.

Keep in touch