SCC T4

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Hiya, 

My name is Chris and I've been diagnosed since December 2025.

I'm currently under the palliative care team and will be undergoing palliative radiotherapy treatment today.

I'm wondering if anyone on this section of head and neck has undergone the same thing. I actually went last week but the mask was to tight this in turn caused me to have a panic attack as my lymph node has grown obviously when the did the original CT mask the lymph nodes was half the size.

They remade the mask last week so around 5 days ago I'm due in at 13.30 and I'm really worried about it as I'm already stressed. Does anyone have any tips to try and calm me down before I get there. Thank you Chris.

  • Hi Chris. Im so sorry to read your story. I hope the RT can give you some relief. 
    Could you ask your GP for a sedative perhaps? 
    Can I ask, is this your first round of RT or is this a recurrence? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Chris 

    Sorry you are feeling so stressed it’s natural to be worried. But you will be absolutely fine just remember it he mask needs to be tight so that they accurately can target the cancer . I too hated the mask and felt super restricted for the first few sessions but then I managed to calm myself using good breathing techniques and channeling my mind elsewhere, think about your journey home what’s on tv tonight anything else and before you know it it’s done. My team always told me when I could swallow and when not to so that was very helpful , the teams are very good at settling you down and can always stop if you have a panic attack. I did get them to stop only once when I was in the mask for too long thought they had forgotten about me ! But of course they hadn’t .. you won’t be in it for very long and soon it will be all over ! 
    Good luck and let us know how it goes ! Don’t forget many others have been through this and understand what you are going through you are not alone! 

    stay strong 

    Helen 

  • Thank you Helen,

    I'm about 40 minutes away from going in and your response has eased me a little bit.

    You're right it's not as if no one else has had to do it. Should put my big boy pants on and get it done and dusted. 

    I will focus on something else and fingers crossed it will get easier through the week.

    Thanks Chris 

  • This is a first and under palliative so not curative. Five sessions only to ease pain load. Oncology have also said I'm eligible for immune therapy after this treatment.

  • Oncology have also said I'm eligible for immune therapy after this treatment.

    Now that’s excellent news. There have been some good results. We have a forum member who had two years of Pembrolizumab and is three years clear of his last dose. 
    Sorry if my question was intrusive. I was trying to understand your situation. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • I will focus on something else and fingers crossed it will get easier through the week.

    Take yourself on a favourite walk. That has worked for lots of people. I had eyeholes cut in my mask and just watched the machine go round and the beam change as it did. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge