Feeling very scared

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Hello everyone, I hope it is okay for me to post here as I honestly do not know where else to turn right now.

I have not recieved a diagnosis, but have been put on a 2 week referral for cancer. My doctor found a "small lump on left oropharynx" (how she described it in my appointment notes) after I made an appointment due to feeling some type of obstruction in my neck for around 5 weeks, it's just behind my left tonsil and she used a little scope to see it, and saw it instantly.

Apparently the hospital I have been referred to in Oxford should call me before the 16th so that I can see a specialist. I'm so frightened, I can't actually put it into words. I just turned 40, and am otherwise generally healthy, so this has scared me stupid. I had bloods taken the same day of my doctor appointment too (yesterday 13th).

I'm sorry if this is the wrong place to post, only I have been reading some of the other threads and seeing there are a lot of people here who really know what I'm feeling, and hoping anyone can help me feel less alone. I can't find anyone who has presented with the same symptom of a visible lump inside of the throat, so don't know if I should be thinking the worst or not but can't think it's going to be anything else :(

Thank you xxx

  • Hello everyone, I hope it is okay for me to post here
    I'm sorry if this is the wrong place to post,

    Of course you can post here. 
    This is the very worst time for you. 
    Hold onto the fact that 90% of referrals aren’t cancer. 
    Keep busy but chase that appointment if nobody gets back to you 

    And keep off Google, please. We all know how many rabbit holes there are there and none have an answer. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Dani,

    It was your blog that actually inspired me to post here, it was good for me to read through and see how you have come through so much.

    I'm trying my best to remind myself of that 90% statistic, thank you Blush 

    I'm going through moments of thinking I'll be fine, then just cold fear. I will definitely chase if I have to! Can't stand the not knowing xxx

    Thank you for taking the time to reply I really appreciate it.

  • Hi  Like Dani says if course it’s ok to postvhere. Over 99% of urgent ENT referrals aren’t cancer but it’s the quickest and best way to get checked quickly. Try to keep,off Dr Google now you’ve found us were happy to help. If you’re unlucky enough to join us we’re here if yin need us fingers x you don’t. I was in your position 8 years next month I was 61 and am still here living a great life 

    hugs Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  7years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thank you so much, just having people say that to me helps more than I can say.

    Funny how I haven't been able to cry yet but just reading someone else saying something kind has set me off, so daft!

    My husband is being so good about it all bit I can see how panicky he is getting so I'm trying my hardest to keep on a brave face, but it's really hitting me now. All the what ifs.

    I am determined to stay away from Google and keep to places like this with real people no worries there! 

    Thanks again for replying to me I'm already so glad I came here xxx

  • It’s human nature ,dr google isn’t your friend you’ll end up down rabbit holes trying to find the answer. It’s all a waiting game for now. . Try not to worry easy to say hard to do keep busy .remember h n c  have excellent curative results plenty if us in here who’ve been there and come out the other side. Don’t second guess, but it’s ok to  cry we’ve all done it me usually at 0300  on kitchen floor whilst waiting for results. 
    hugs Hazelx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  7years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Funny how I haven't been able to cry yet but just reading someone else saying something kind has set me off, so daft!

    No, do it. 
    it's amazing how that makes you feel. 
    I always knew I’d be fixed but there were times I felt so sorry for myself all I could do was take myself off to the bathroom at night and bawl my eyes out. So not daft…., just surviving. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi I haven’t had your symptoms so I can’t advise you but just reiterate what the others have said, that most referrals are non cancerous. If the worst were to occur just knowing you have this group to reach out to will be a big help to you. I know it was for me. Good luck and kept us posted. 

    Nicky 

  • Thank you all so much, its so good knowing I can come here and speak to people who have actually gone through it all x

    Think I'm just in shock, it was a scratchy annoying feeling on the left of my tongue that wouldn't go.... had no idea of a lump or anything no other symptoms or problems, so when she said she was urgently referring me I just sort of stopped thinking properly!

    Like you guys say its just a case of waiting but it feels like I already know, if that makes sense? That they will tell me the worst. And I'm trying to come to terms with it. I'm usually pretty positive honest! Smile

    Did the ENT tell you right away when you were first seen or did you have to wait a while?

    Thanks again all, so appreciate you taking the time to talk to me xxx 

  • Thanks Nicky, I don't really speak to many people about things in life so this group has already taken a weight off my mind just knowing you're all there x