Post treatment recovery

Most of us recognise these symptoms, we have been through a lot physically and mentally.... fatigue and PTSD can hit out of the blue...things do get better as we move forward...taste massively improved for me around the 1 year post treatment mark...getting rid of my PEG  tube was a great boost.

Contact your CNS/GP for advice....or look for local cancer support groups

Hi Ade, yes it's a very strange time. After being at the hospital every day you suddenly feel alone and nothing seems to be happening. This is normal and so are your side effects. It is such a very slow process with the swallow and dry mouth. Or at least it was/is for me. It does improve but to what extent is so very variable. I still struggle to swallow and only really eat soft foods. I can push some other food down with water but it's such a chore. Dry mouth has improved but again mine is very dry, I use xylimelts night and day and chewing gum helps too. Everyone is different and you will find your normal but it takes time. I'm 2 years out of radio/chemo in August. 

Ade said:

What do i do? Anyone else feel the same? 

I was up and down but my longer term effects weren't as profound as yours. I was able to shake myself out of it. Counselling would definitely help so contact your GP? The whole sector is seriously damaged so you might need to find something yourself. 

Do you have a Maggie's anywhere near you? That might be an avenue to pursue.

A lot of how we feel after surviving the treatment is well encapsulated in this article by psychologist Peter Harvey. It's worth a read HERE

EDIT.....I read 2 years into recovery, not 2 months...so apologies. Everybody else's reply is more pertinent than mine. It's early days for you. 6 months will see you much more back to your old self

I am 11 weeks in recovery after the same treatment as yourself i felt all you have, but have improved vastly over the last month especially with eating and swallowing which has helped my mood no end .I was still feeling crap at 7to 8 weeks and wondered if it would ever get better but it has ,my taste is good and certain foods i still struggle with but im getting there .Try not to overdo things take it easy you will not be able to do things like you could before treatment go with the flow its a marathon not a sprint but you will improve as the weeks go by .Dont feel guilty about needing a rest or a sleep its ok its its part of the recovery talk to your cancer team if your concerned about anything .Good luck .