New with new diagnosis

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Hi I'm Stevie, just last week I was diagnosed with Cancer found after a biopsy on a lump in my neck. Just trying to process the news and await the scans to identify where it stems from as its in my Lymph node. Any information from anyone on what to expect would be greatly appreciated thank you 

  • A lot of tests and scans in the next few days/weeks, try not to let things overwhelm you, keep occupied, stay away from Dr Google, mask fitting, dental scans, feeding tube fitting if needed... keep posting on here.... plenty of support and advice available from those who have been there or are still going through the treatment process.

    Michael

  • Hi Stevie and welcome. 
    Sorry to see you here but do stick around

    Do you know what sort of cancer was found in your lymph node? If it’s squamous cell carcinoma it’s likely to be a secondary spread from your throat, usually tonsils. 
    Do you have an appointment for your scan yet. Do you know if it’s an MRI or a PET/ CT? 
    what happens next will depend on whether and where they find the original cancer. 
    I’ll echo Micky in his advice to stay off Google

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Stevie welcome to the group from me. The next couple of weeks or so will be very busy, with them getting all the info from scans etc and preparing you for the treatment that will be best for you. Once everything is in place and you start your treatment you will feel a bit better about it all. In the meantime, if you have any questions, just ask, we are all here to help if we can.

    Ray.

  • Hi and welcome ,sorry to see you here , probably be busy for a couple of weeks CT,MRI scans etc to find the original source of the cancer ,mine was found after my lymph gland was swollen the consultant scoped me and found a growth at the base of my tongue .Once it is established where the cancer started a course of treatment will be determined .This could be a combination of things .You will feel better about things once you know what your up against .Keep us informed we have all been through our separate journeys and there is plenty of good advice and support .

  • Hi Dani thanks for replying, I had a biopsy on Mon told on Thu and ENT camera up my nose Fri morning. CT & MRI have been requested. An enlarged Tonsil was seen with the Camera. Apart from this I have no other info yet. 

  • Hi thank you, I think this is the hard part just now the not knowing where its source is or treatment yet. Fingers crossed the scans are quick 

  • Hi again Stevie. Yes the waiting  is absolute pants but all you can do is keep busy doing things you like to keep your mind occupied. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • We are about 4 months further along and I so far think the waiting was the worst. I’m the wife not the sufferer but am on the journey. Ours was squamous cell found in lymph node and salivary gland.

    Try to just take it day by day and appointment by appointment. It feels like ages but it sounds like they’re moving as fast as they can.

    My husband has had surgery and starts chemo radiotherapy on Tuesday. We are anxious about the side effects but actually we have been happy and had some lovely times with our kids in the last few months. You really do learn to live with it.

    hoping you get a quick treatment plan an all the best x

  • Hello Stevie, and welcome to the group nobody wants to join. The time of waiting for a full diagnosis and treatment plan is really tough. Wishing you well - stick with us, this forum is the best for info & support

    Catriona

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 3 years all clear. See my profile for longer story