Tonsil cancer…..terrified!

Hi and welcome from me.  I think we all start off terrified by the prospect of cancer. Both your ENT and oncologist are planning to cure you.  The treatment is tough but doable.  I had a PEG and would recommend it.  However speak to your clinicians about your specific issues. 

Whatever you do don't Google anything and stay with us for support and advice. 

Hi  welcome from meme tj our grouk.
AS Peter says we’re all terrified to start with. Please keep off Dr Google you ascare yourself more and end up now rabbit holes that you can’t get out of curative intents is quite a common phrase that oncologist use HPV driven tumours do have excellent response to treatment treatments is hard. I was 61 one diagnose now 69 and living in a good life

now you’ve found us stuck with us in here and we’re all happy to help  

Hazel 

Thanks Hazel.

Ive just read your blog and seen your videos. You’re an inspiration x

Hi there ,I was in your position a few weeks ago. I understand exactly how you feel, as we all do on here.im t4a n1m0. I'm having 6 weeks radiotherapy and 2 sessions of cisplatin. 1st one has been delayed a week due to infection. I too have a peg fitted. Wasn't great at first but I had an infection  . As soon as stitches were out it was ok. Please don't go on Google,  or overthink I've done both and nothing good comes from it. These other forum members have saved my sanity these last few weeks. Its normal to worry, you be strange not to. I'm 1 week into treatment  at clatterbridge  , like you, my ent said curable, my oncologist said treatable. Just put your faith in the fact they deal with this every day. I promise you, once you start your pre treatments  the week or so before you main treatments  you will feel calmer  as you're in the  system.  I felt so anxious and in no man's land in that time between being told by ent and seeing the oncologist . Felt like I was out with none looking after me. But as others assured me ,the wheels  are turning in the background,  getting you treatment plan ready. Hold on , it's a bumpy ride but ask about anything you need to on here, it was my saviour. 

Tracy xx

HI, and welcome ,i am 8 weeks into recovery from the same treatment as you, my cancer was base of tongue and in both lymph Glands no results as yet weather treatment has worked but i am hopeful .I had a RIG fitted for feeding purposes this was a good move because i could not swallow 2 weeks into treatment i am still using it for the majority of my food intake .It is natural to be scared but your cancer team will be doing their best to cure you i know there are no guarantees but the percentages are good .Try carry on as usual as long as you can be as positive as you can this helps you get through the treatment which is not easy but is doable i have found recovery harder than the treatment .Keep in touch and read some of the blogs there are plenty of success stories here .

Bless you.  Inspirational such a kind thought. I did it as I had so much living to do and wanted others to know that it can be done.

Happy to help I’m currently sat on the balcony in Spain reading and have been  riding my bike. I can’t lie treatments hard but if h can do it so can you.
One day at a time one step  at a time we’re all here to hold your hand if needed. It’s ok to rant rave or cry. 

hugs Hazel 

Hi, wishing you all the best for your treatment take a day at a time. I have tonal cancer aswell, I’m awaiting second surgery to get clear margins from removing tonsil and tumour  and also having a neck dissection, hoping that when results come through I will be as they say cancer free until proven otherwise. I’m scared too but we must remain positive and fight. Take care 

Sending love to you on your journey as well x

Been there and was also terrified, we learn quickly to cope with our situation, overwhelmed is natural, I went into a tailspin when I was told of the challenges I would face but with the support of my wife, CNS and the oncology team I soon got to grips with my situation...PEG fitting was not too bad and turned out to be a lifesaver, totally reliant on my feeding tube for a good few weeks...nearly 3 years since I finished Chemoradiotherapy and life has returned to nearly normal...off to the Canaries on Monday...been on a few breaks since finishing CRT.

Good luck...keep posting.

Thank you Michael. Good to know you’ve come out the other side.

Enjoy your holiday