New to group I’m feeling overwhelmed

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Hi

I’m new to online forums but feeling overwhelmed and despite support from friends need to just get it all off my chest.

My husband had neck dissection and partial mandibulectomy  two weeks ago, then back to theatre next day to treat a blood clot. He was in ICU for 5 days then transferred to specialist ward. His speech is OK and his mobility had progressed to climbing stairs. However he still can’t swallow even sips of water so nasal tube replaced with a PEG on Sunday. Next day very low blood pressure so fitted up with all sorts of machinery monitoring him so not able to walk apart from to the loo. Now been told he has a C.diff infection! They are also going to do a blood transfusion today.

Feeling angry at how unfair life is at the moment.

  • Hi Hope,

    Sorry that your husband is having such a tough time of it - as are you.  Sounds like his initial recovery from the surgery was positive after the blips, but to get C.dif  just sucks.  Hopefully the PEG fitting went without a hitch and that will be the start of his recovery as it will enable proper feeding and hydration as well as a route for meds.

    This forum is a good place to get things off your chest - or ask for help and advice.  We don't judge and know from personal experience just how difficult this journey can be - both for the patient and their loved ones.  Remember to take care of yourself as well as your husband.  Big hug

    Peter
    See my profile for more details of my convoluted journey
  • I can understand you feeling angry Rage. "But you can only play the cards that you are dealt"

    Keep strong and keep visiting here. To get advice, have a rant and just get things off your chest and remember it's a marathon not a sprint.

    Stay positive and best wishes with everything Thumbsup