New to group I’m feeling overwhelmed

Hi Hope,

Sorry that your husband is having such a tough time of it - as are you.  Sounds like his initial recovery from the surgery was positive after the blips, but to get C.dif  just sucks.  Hopefully the PEG fitting went without a hitch and that will be the start of his recovery as it will enable proper feeding and hydration as well as a route for meds.

This forum is a good place to get things off your chest - or ask for help and advice.  We don't judge and know from personal experience just how difficult this journey can be - both for the patient and their loved ones.  Remember to take care of yourself as well as your husband.  Big hug

I can understand you feeling angry . "But you can only play the cards that you are dealt"

Keep strong and keep visiting here. To get advice, have a rant and just get things off your chest and remember it's a marathon not a sprint.

Stay positive and best wishes with everything

Your anger is totally understandable watching someone you love going through something like this must be awful ,my wife is having to watch me go through my recovery and i know it is getting her down because she cant help in the way she would like .I have told her she must take some time out for herself so she can have a break from me .i hope things get better for you and your husband soon .xx.

So sorry to hear of your husbands struggles. In July 2025 I had a partial mandibulectomy and neck dissection too. It went well but I had to have a further surgery about 4 days later to deal what they thought was an infection - thankfully it wasn’t. I was pretty uncomplicated other than 5hat and had an 11 night stay and then home. Recovery has been slow for me (I also had adjuvant radiotherapy to belts and braces the surgery in October/November that set my recovery back - BUT it does slowly get better.

i found the speech and language team and dietician incredibly helpful in the early days to get me eating and talking again - still areas I know can improve.

I've discovered 2 things, progress isn’t linear - there are days where I feel I have taken a step back and other days where I feel I have moved forward and that’s ok. Also, realise that it really is a marathon and will take way longer than you think it will. It’s ok to take time and have down days too.

the amazing people on this forum are incredibly supportive and encouraging so use their experience to draw on when you need it.

take time and heal well.

Thank you Peter. A bit of better day today with a few positives .