Hi

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Just thought I would say hi

Just had my conformation of my biopsies. 

  • Level 3/4
  • toncil, base of tongue and lymph nodes 

Awaiting my appointment with dentist and the oncology team to discuss treatment plan.

Been keeping active reading the amazing info 

  • Hi  

    Welcome to the forum 

    Stay with us, there is lots of help here. Ask anything you want and there will be somebody who can answer. 
    Let us know how you get on. Your treatment plan is likely to be chemotherapy and radiotherapy with maybe surgery on your lymph nodes

    Good luck

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Just had a call for dental check Friday 

    T4 N1 M0 hpv+

  • Hi and welcome from me.  As Dani says, keep with us and the journey will be slightly easier with helpful advice when your need it. 

    Peter
    See my profile for more details of my convoluted journey
  • Just had a call for dental check Friday 

    Expect dentist to have good poke around and for you to have an OPG which is an X-ray of all your teeth and jaw. Radiotherapy compromises the blood supply to the jaw. Not all parts of your jaw will get the full dose but if there are any teeth in the line of the highest dose which are unhealthy or risk having to be removed in the future the dentist will recommend extraction before treatment starts

    The reason for this is that  because of reduced blood supply extractions don't heal as well and there is a small chance of developing necrosis (death) of the jaw.

    I avoided any but some people have to have wisdom teeth out. Make sure everything is explained properly to you.

    I would heartily recommend you go to your own dentist asap for a good clean and a fluoride varnish. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • I've had a OPG 3 weeks ago

    And as for my dentist 

    I believe he's part of the failure  for not noticing  things were wrong  2 weeks before my initial bloods 

    I had explained my symptoms  and my teeth and gums were saw

    Also at this time there was evidence  on my toncil 

    T4 N1 M0 hpv+

  • Ah......An all too common problem. Then my advice would be to ask of hospital dentist might do it

    Do you know what hospital is planning for Friday if they have already done an OPG?

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • I have no idea yet

    But im feeling a few out as my teeth are in a bad state 

    Also reguarding diagnosis 

    I could only get to see a nurse (she diagnosed  a infection and said that that was causing earache .my slimy mouth was down to old age 63 att.this was April 25.i got totally useless antibiotics 

    But i took this as being correct so carried on until oct where I saw another nurse in practice who took bloods etc .

    Second nurse very good 

    My symptoms  were the same at both appointments 

    T4 N1 M0 hpv+