Next steps on my journey

Yeah normal to lose a couple of teeth, to prevent infection. Get a PEG fitted, so you can get nutrition. The mouth ulceration will hurt a bit, so get 30mg dispersable cocodamel and some oramorph and feel free to take them. If you feel that you have a slightly ‘sunburned’ feeling neck, get a prescription for a cream from your consultant pronto, try not to worry about it because it goes. 

Thanks for that the Dentist I saw has asked my GP to prescribe some special toothpaste. 

Glad you're on the pathway to treatment.

Be prepared for the GP not to prescribe the toothpaste (probably Duraphat 5000).  Most areas require your dentist to prescribe the toothpaste. That can be difficult in these times of few NHS dentists. If you have a problem go back to the dental consultant to see if they can help. 

That's a good idea Peter. I will give the GP the chance to turn me down. I will be at the Christie next Tuesday but they won't be starting next week. I am told they have to make a mask before the Radiotherapy can start. 

Hi there’s a protocol to go through teeth checked  mask made then you’ll have another scan. Then the technicians will do a personalised plan . Then a space will be allocated for your sessions. The toothpaste should like Peter says be issued by dentists the go used issue then when I first got mine. It’s all about whose budget pays for it. 
Treatment can be challenging but take it one day at a time. 
hugs Hazel