Recent throat cancer diagnosis, P16 negative

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I’m really wanting to hear from someone else in a same or similar position to a family member of mine. They have recently been diagnosed with throat cancer after finding a lump in the neck. They have had tors for removal on tonsils and base of tongue. These tests came back that there was no cancer present and they cannot find the primary. The cancer is p16 negative, plan is neck dissection with radiotherapy as chemo isn’t an option as they aren’t fit enough. 
please help me, dr google isn’t very nice with the search results

  • Think I am on similar journey just slightly behind waiting for pathology after Tors

  • Hoping they find your primary. Tors was on the 22nd October and results on the 3rd November. Praying for you Heart

  • Sorry to hear about your relative's diagnosis.  My primary was eventually found, but I'm sure I've heard of some forum members with an unknown primary.  Hopefully someone in that situation will reply to you later on.  In the meanwhile stay well away from google.  My consultant used to say that the only websites I should look at were the NHS, and the ones run by cancer charities.  

  • Thx - Sounds like moving more quickly than me - tors 27th no date for follow up - rang up to chase to be told specialist secretary off sick ! Pushed person on phone but didn’t fill me with confidence so contacted the cancers nurses - good look to u 2 will be interested on comparing notes - pain finally easing ! I will admit eating a weetabix made me cry the other day.