Hello, I'm new to the group

Hi everyone.

I now have an outline treatment plan. T4 N1 M0 HPV +

Radiotherapy & Chemo for 6 weeks starting when everything ready (approx 4 weeks, so I'm guessing w/c 22/9)

PET scan & Dentist assessment booked. 

If at the end of treatment Lymph nodes are still enlarged I will have an op then. 

I'll update again after the dental appointment - eek.

Thanks for being there.

Becky W

Hi that’s the usual  treatment plan for hpv driven cancers. Not everyone manages all the chemo it’s not unusual the radiotherapy  us the main course if treatment chemo is around 5% of the impact.
Take everything one day at a time you’ve found us in here so any questions we’re all happy to help. Your radiotherapy team you’ll see daily they are your first point if call 

if i can do  it anyone can 

Hugs  Hazel 

Glad you have a treatment plan now. I have no experience of either but there are plenty on here that do, to guide you and support you. You have a bit of time to organise things too which is good. Is that everyday over the 6 weeks? Thanks for the update. Keep strong x

I assume it's 5 days per week. He said 30 sessions of radiotherapy. 

Not sure on the chemo yet. x

Yes that’s what I meant sorry. So radio first then chemo after? X

I've got ulcerative colitis (like crohns but large bowel only).

Oncologist needs to check my tummy can cope with chemo and peg tube. Treatment can start either way but chemo will be with RT if possible. 

Becky

In an ideal world they should do RT before chemo as the saline you get makes the mask tight but because they need you in early to get blood tests done before your chemo is prepared it’s unlikely. So generally it’s chemo for a few hours then over to RT. 

Don’t worry if they can’t fit you with a PEG. An NG will do the job just as well and us fitted when you need it. 
That’s what I had and it did the trick. 
Good luck, just take it day by day. Do as you’re told by your team, tell the RT guys how you feel every day and what you need. Don’t put up with pain. There is something to mitigate both that and nausea. Hugs 

Going for my results wednesday, So far they cant find my primary only p16+ in the submandibular lymph ... Im expecting TORS to remove my tonsils /base of tongue biopsies. We will be about the same time treatments I reckon and also I share your drea dof dentists and know I will have to have 3 broken /bad molars removed before I even start :(