Hi all. I've received confirmation that I have HPV + base of tongue/tonsil cancer.
I'd already done the homework so wasn't surprised by anything new. I did also have a tentative look at the posts here, which are very informative & supportive.
The oncology side of the treatment will be in Oxford, 1+ hours away (which will be interesting for a block of 6 weeks). Hopefully I'll get an invite to go for initial meet within the next 2 weeks.
I have a couple of questions at this stage.
1) What's the likelihood of a neck dissection? It's in my Lymph nodes too. How long does it take to recover from this before radiotherapy?
2) TEETH. I'm very dental phobic and any treatment needs to be done under sedation. I have lots of metal fillings in my molars from 25-30 years ago. Is it easier just to say goodbye to them? how long from extraction can radiotherapy start.
Thanks in advance.
Becky
Good luck for today. Take your time and get everything explained properly. Make sure you have your CNS contact details. Let us know how you get on
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I was diagnosed with the same as you in April/may last year. I opted for chemo radiotherapy after initially being very pro-surgery. My oncologist suggest this had a good success rate Abd treatment could start sooner. I'm just one year post-treatment and so far my 6-weekly checkups are clear. Good luck at your appointment today x
Hi Becky, my husband had neck dissection, and was in hospital for around 12 days, his first few days were restrictive mainly because of the various tubes for medicine and food ,catheter etc, but he was up and about slowly after that. Once the tubes were removed he improved rapidly. Regarding teeth, he had two removed last week as the roots didn’t look very strong, but had no side effects and was eating well again quickly. His radiotherapy begins on Monday.
Paula
Thanks Paula.
I'll know more this afternoon.
x
Hi Becky
i am 3 weeks post neck dissection surgery and am recovering really well
My only problem is a I have numbness on my neck and chin area, which may or may not be permanent, but such a small price to pay for the peace of mind of having any cancer removed.
I wish you all the luck in the World with your treatment moving forward.
Will you also have CRT? How long before that starts?
Thanks
becky
I am awaiting the results of the MDT Meeting to find out if radiotherapy is recommended. I am hopeful that having had 2 surgeries, it won’t be needed
Thank you so much.
please try and stay positive x
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