Husband's Tonsil cancer - struggling after treatment, when will he feel better?

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Hello Blush my husbands got tonsil cancer which spread to the lymph nodes in his neck . On Friday 16 July he finished 7 weeks of radiotherapy ( 3 chemos ) . His still eating a little and drinking , hasn’t used his stomach rig yet Fingers crossed tone1.this week has got a lot harder for him , pain wise and he’s sleeping a lot . His had enough and finding it hard Cry .has anyone got any advice on when he will start to feel better please ? 

  • Hi Lulah. Welcome to our little community and well done Mr Lulah or getting through his CRT

    Everybody’s recovery is different and he’s done really well to keep up enough oral intake to avoid using his RIG. 
    Radiation peaks at around 2/3 weeks after treatment end so he has a way to go. 
    For most of us we seem to be feeling a bit better by six weeks and turn a corner twelve. By six months he should be feeling more like his old self and be eating well. Taste and appetite take a lot longer. Recovery is slow but sure with steps back as well as forward. 
    How are you feeling Lulah? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • His had enough and finding it hard

    Get that RIG used for a couple of weeks. The better his nutrition the quicker he will heal. 
    Let him sleep. I slept for two weeks after treatment end. It’s the worst time. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • I’m ok Blushthanks  , it’s hard not being able to take the pain away Cry we have a holiday booked for beginning of October? Hoping my husbands feeling a bit better by then 

  • , it’s hard not being able to take the pain away 

    I know how you feel but I’m sure your husband wouldn’t want you to. You have your own pain to deal with. Carers do have it tough. There are a few ladies here looking after their husbands. I’m sure they will be along shortly to help you along 

    As for going away as long as you are here in the U.K. and not far from home you should be ok. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi

    It does seem like the pain and associated lows will never end, but they do, took about 10 weeks to ease off for me.

    Holiday is a good idea, my wife had a holiday booked for us to Cyprus, which I managed and really enjoyed, we both needed the break, it gave me a target to aim for.

    Micky

  • How long after your treatment was it , that you went to Cyprus , our holiday is to Spain , hope his going to be ok then ? 

  • We’re going to Spain , hoping he’ll be okay ? 

  • Why does the hospital tell you 2 weeks and then you will start feeling better ?

  • Stage 3 tonsil cancer, 30 radiotherapy and 6 chemo,

    We travelled abroad 4 months after conclusion of CRT, feeding tube had been removed, I was eating medium sized meals.

    CNS happily gave the go ahead for fit to travel, GP confirmed this and emailed me a fit to fly certificate. Insurance (hefty) and GHIC obtained.

    Your husband seems to be further forward than I was.

    Micky

  • I rang allclear travel insurance, they quoted me £4,200 pound for a years cover to Europe ! RIDICULOUS!!  Do you know if insurance is lower after 12 week pet scan ?