Hello

Hi Welcome tong( club that no one wants to join. I would imagine you feel angry at being told one thing but now it’s changed. All I can add is that radiotherapy while it’s hard it’s doable. I was 61 when diagnosed I had 35 sessions please try to concentrate on what’s  coming up and get through that.
Then maybe involve PALS at yiur local hospital for further investigation. 

we can’t comment on what the consultant said as cancers behave in different way.s. Try to put that aside and we’re all happy to answer questions in treatment and recovery. Keep in mind that head and neck cancers do respond extremities well to treatment.

My husband was my lifeline he did everything for me through treatment and recovery.he drive to every appointment did my meds feedingbtube and looked after me leaving me free to concentrate in treatment and recovery 

Try to accept help when it’s offered and in meantime make sure he continues to eat as that will help him further down the line.
I’m 7 years post treatment and living a good life. 
You will feel angry and your husband will be going through all sorts of emotions and worries.

LHugs Hazel 

Hi Mrsredcat 

So sorry that your husband is having complications. 
Cancers do change and morph into something more serious than at first thought. 
You need to get things in order before you think of making any formal complaint. It may be that a simple but more thorough explanation may clear the air. 
When were you told the cancer was simple to deal with and by who? Before or after biopsies and scans?  because a visual inspection very rarely shows the true extent of the tumour. 
My tongue cancer was 15mm on MRI but 23mm by the time RT started, a period of 10 weeks. It was inoperable but treated successfully by radiation. 
It went from. T1 to a T2

I hope you get some answers and soon. 

Mrsredcat said:

I feel totally impotent and don’t know what I can be doing to support him.

Of course it feels completely alien and you are floundering about in the dark. But stay with us. Apart from us patients there are quite a few ladies here supporting their partners through treatment. You’ll step up to the plate, I promise. A day at a time. 

Thank you. The specialist nurse advised us to talk to PALS, but I feel we should try and get through first. I complained about a consultant before and was punished by making me wait to be referred to another consultant as I didn’t have any faith in him! Lesson learned - wait until after to complain! 

Thank you. I’ve made a record of what happened and who said what already, so when we are ready we can make a complaint and I will ask for the records so I can see what’s recorded there. But not until we’re through and out the other side. It’s good to hear about the experiences of others.

Mrsredcat said:

. I complained about a consultant before and was punished by making me wait to be referred to another consultant as I didn’t have any faith in him! Lesson learned - wait until after to complain! 

Struth! Yes document every thing. Have you gone to a different hospital or are you still where you started? 

RT can have quite a few nasty side effects, some patients miss the majority of these, will chemotherapy be required?    Complaint ? Make a draft copy of your complaint online, update it throughout treatment, complaints usually have a time limit of 6 months from diagnosis, misdiagnosis/medical negligence 3 years.

Keep the forum updated with your progress, loads of support 24/7.

Still where we started out. He was urgently referred there in April, by his dentist. He had an appointment with the consultant in 2 weeks after that.