New do Hello

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  • My Son diagnosed in February.  Stage 4  throat cancer. Had teeth out before starting treatment but his breathing was compromised so op was aborted and he ended up on a ventilator in Critical care for 1 week. The  over to ENT ward for a further 2.  In there in had a tracheostomy and RIG fitted. Thenon 1st Ju ne finished 6 weeks every day of Radio and 6 weeks once a week of chemo. Lost 3 stone. Can only sip.water.but the  aspirate. Nutrients Nurse and.medicine by tube only. He is in  bad way. I hope someone can inspire him on here. V difficult times.
  • Hello Gertrude and welcome, but so sorry your son's circumstances have brought you here.

    Quite a few of the procedures he's had are very similar to those my fella had in the early days of his treatment, although he hadn't had RT at that stage.  Is your son at home now and are you with him?  I appreciate he's going through difficult times and maybe, by getting in touch with his CNS, she could get him support arranged to help him cope as he's obviously struggling.

    If you'd like to chat further, I'm available to listen and try to answer any questions you might have.  Don't despair, and assure your son too, that help is always here.

    Sending you both hugs xx

  • Thank you for replying, appreciated.

    My Son ia 44 and lives with me. He is stubborn and is not easy to deal with. We see oncologist next week to see what the next plan is.  He had US last week and next  week has MRI .

    The trachy is horrible but hemia still coughing up a lot of phlem so has a suction Machine. A week after finishing the chemo and RT he was in with sepsis for 6 days. He has had so much to deal with and as he lives with me and his Dad and Daughter (21-year-old) they say all is taken out on.me.mostly. 

    I hope your Man has recovered well Kissing heart

  • Hi again Gertrude.

    Oh crikey, you have got a lot on, and your poor lad, too.  Unfortunately, when a loved one is suffering, those closest sometimes tend to take out their worries on their nearest and dearest.  It happens, so try not to take it personally.  Did you manage to speak to his CNS about your concerns?  If you haven't yet, I'd advise to make her your first port of call and tell her your son could do with some support, as your meeting with the oncologist is still some days away.

    Thank you for asking about my fella, and he's doing ok; still in the process of recovery but these things can't be rushed.  If you like, take a look at my profile by clicking on my username, that way you'll be able to see his journey, and maybe your son would like to read it.  He'll see, that with perseverance, things can turn out well, even when events seem like they're taking over.

    Best wishes for you all xxx

  • HI Gill? Wow you and your.man have been through loads. Such a past year of ops and treatments. Well done to you both. Cancer free must have been such good.wordsnto hear. Such a fighter. Much love

  • Aw thank you so much.  I'll let you into a secret - I left out loads but it could have become the equivalent of War and Peace if I'd carried on!

    Keep going lass, and if things get tough, help is always at hand even if you have to look for it.  Please keep updating on your son's progress and always ask here for support and advice.  We have our very own online 'GP' here by the name of Dani - she'll respond if you send out an SOS!

    All good luck and hugs xxx