Saliva gland cancer surprise after eye loss

  • 4 replies
  • 152 subscribers
  • 125 views

Hello.  I was diagnosed with eye cancer in right eye in February had that removed and fortunately now totally clear, but at the same time they removed a left saliva gland that irritated me and it turned out to be malignant and now they want to do Radiotherapy on the area.  Never showed up on MRI scan so came as a huge shock to me that saliva gland was cancer.  
I am terrified of the RT on left said of neck is close to my only remaining eye and heard that eyes can suffer 5 years after RT and contemplating saying no. 
what’s people experience or RT on neck and may effect on eye the same side.

Thanks

  • Hi Andrew! I'm really sorry to hear about your diagnosis. I can relate, as I'm almost a year out from 35 rounds of radiotherapy to my neck for lymph nodes and base of tongue cancer, and I haven't experienced any issues with my eye at all. I totally understand your hesitation, but it might be helpful to chat with your oncologist or the radiotherapy team for more insights. Take care!

  • I’ve been told the eye effects can be 5 years down the line which is why I’m worried as I only have one eye and it’s on the side of the neck issues.

    radiographer has explained this is very rare but it does happen.  They can’t see my cancer on ct or mri as they took the mass out and this is more preventable RT but I am so unsure about proceeding

  • Hi Andrew 

    • I just about to finish 30 sessions of RT this Friday.. I had salivary gland carcinoma 3.5cm removed plus lymph node which means nerves to left side of face either removed or damaged resulting in me able to close my left eye. The RT was a lot easier than expected and was quite a relaxing with full face mask. You need to think positively about the treatment and just follow advice given. I've come out the other side with slight redness on cheek but nothing else..with all these treatments be glad they're trying to help you. Wish you the best .
  • I didn't know that about eyes Andrew. I understand why you would be concerned. There are people on here a lot further down the line and experienced than me so hopefully someone will reply.