HPV virus head & neck cancer

Most on here have been through similar, how are you faring? I'm 2 years out from treatment for HPV16+ tonsil cancer, chemoradiotherapy was not an easy treatment.

I'm feeling good. Thank you. I have had to adjust my lifestyle to accommodate the changes radio/chemo has made. Dry mouth/no Silvia, tinnitus and reduced mouth opening. Small sacrifices though, I'm grateful that so far my 6-week check-ups are still clear. 

How are you feeling? 

Feeling very good, just back from a holiday in Greece, doing a bit of swimming, cycling and gardening, appetite and taste nearly back to normal.

The 'new normal' is something that we all have to cope with, but as you say it is a small sacrifice. Well done in getting through the very tough treatment, not for the faint hearted. My check ups have now gone to 6 monthly intervals.

Welcome to our little community. A lot of us here had the same CRT. You’re right, it is a journey and a half but luckily most of us make a good recovery. 
I’m over six years clear ans still doing my swallow and jaw exercises but apart from a dry mouth at night I’m my old self. 
Improvements  continue for a few years so hopefully the food issues will resolve. 

Miclee said:

Dry mouth/no Silvia, tinnitus

Hi Miclee, I'm almost 16 mths out, and this is part of my 'new normal.. but, as you say, 'small sacrifices'.. 

Fantastic news.  It’s great you're feeling well. How long did it take your taste to return to the new normal. (the paragraph that I'm all too familiar with) 

congrats on the 6 monthly check ups 

Taste gradually returned to something acceptable after about a year, still a few things that are not quite right, chicken dishes can be quite tasteless, some meat dishes, thankfully curry and chilli con carne are OK.