Hello Newly Diagnosed with p16 negative

Jimmy 8 hours ago

3 replies
153 subscribers
77 views

Hi everyone,

I’m new here and wanted to reach out after recently being diagnosed with p16-negative head and neck cancer. I’m still in the early stages of processing everything and trying to understand what this diagnosis means for me — especially since so much information out there seems to focus on p16-positive or HPV-related cases.

I’ve found it quite difficult to come across others with a similar diagnosis, particularly here in the UK. I’d really appreciate connecting with anyone who’s had experience with p16-negative cancers — what treatments you had, how you coped, and what the journey was like for you.

I’m currently awaiting treatment and feeling a bit overwhelmed, so any shared experiences, tips, or reassurance would mean a lot right now.

Thank you in advance for any support you can offer — and wishing everyone here strength and healing wherever you are in your journey.

Warmly,
Jimmy (UK-based)

Sophie66 8 hours ago

Hi Jimmy. So sorry to hear about your diagnosis. It is always a shock when out of the blue you get a cancer diagnosis. You will get the very best treatment whether your cancer is HPV driven or not. I had jaw cancer and mine was not HPV. I had the same treatment (an op and radiotherapy) as anyone who's cancer was HPV and had the same good results. It is now 3 years since my last op and all is going well. This is a hard time waiting for results and an outline of treatment. However once things move forward it does become easier. There is light at the end of the tunnel as I can assure you as I am living a great life now.

Lyn

Sophie66

Beau Chapeau 7 hours ago

Hi Jimmy, sorry to hear of your situation, and although I can't offer you any help regarding P16 negative, I can point you towards this post, which will hopefully offer some helpful advice.. (+) Helpful tips for those about to start treatment.. - Macmillan Online Community

Loz (62)

Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..

Deb11 3 hours ago

Hi Jimmy, I’m really sorry to see you here, my husband has completed treatment and we’re waiting (both terrified and exhausted) for the results of his PET scan.

Check out my post -

T4 non HPV head and neck cancer

and my profile.

I’d not heard it mentioned as P16 negative, I had to look it up

Were UK based.

Happy to answer any questions you may have.

Stay with us. The people on this forum are a real life line.

Hugs from Wales.

Debs xx

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