Hi Everyone
Sorry I wasn't sure which section to put this in but felt I wanted to ask this question in this forum as I think we have specific challenges.
I started my treatment on Monday this week, for tonsil, tonsillar pillar and base of tongue cancer which has spread to the lymph node next to the affected tonsil.
I'm having 4 days of cistplatin chemotherapy and 35-40 radiation days.
I'm only on day 2 and despite not going outdoors and wearing a factor 50 uva/uvb suncream today I have got very rosy bits, just from sitting in a car on the way to the hospital. My radiologists have told me I need to be very careful and need a neck cover and appropriate clothing etc.
So to cut a long story short, what are you all wearing for covering your neck in this heat? Also recommendations of comfy clothes to wear, I'm only 43 and lost 11 stone 4 years ago so hate being completely swamped in layers
Sorry it's a long one! Hope you're all doing well
Kirsty x
Hi Kirsty a hat with a big brim that covers a lot if your neck. You can get a light silk scarf in wither a buff but not in this heat. If you e not got a silk scarf ( ps I haven’t ) any lightweight scarf draped around your neck. You can rock the movie star5 look with a pair of sunglasses lightweight linen on yiur arms in a shirt or lightweight jacket. Saying that I’ve spent all day in the allotment in shirts t shirt plenty if factor 50 and a big brimmed hat.
I wear factor 50 every day and spend 5 months of year in Spain sp cycling so it’s 2 nd nature to me to protect my skin. Get a hat and that’s a good start.
good luck with treatment
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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