Referral for tongue biopsy

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Hello you lovely people, 

I'm a single dad of young boys.

Yesterday, my dentist said he was referring me for a biopsy of the apparent ulcer on my tongue.

This came as quite a shock.

For about 5 months, I'd had sharp teeth irritating my tongue and mouth.

Eventually, I went to the dentist. Never even considered anything sinister.

A month ago, he filed down one sharp tooth and scheduled a follow up appointment.

At this new appointment yesterday, he filed down the other sharp tooth I'd identified, then talked about the referral.

He said my ulcer was "quite large" and hadn't healed in the way he'd expect.

Ever since that moment, I've found myself almost frozen with fear, as if I've actually received a diagnosis of mouth cancer.

Which I know I haven't, but I can't help imagining worst case scenarios, which really doesn't help.

Neither was a GP especially helpful when I went to see her yesterday afternoon. She couldn't give me any perspective, or any odds, or any reassurance really, apart from to say it was "promising" (I think that's the word she used) that the lump on the side of my tongue hasn't bled and is painful. 

She also made vaguely positive noises when I told her I have what might be lichen planus elsewhere on my body.

Really glad to arrive here to chat with people who've been where I suddenly find myself now.

Looking through some of the posts, I can already see people in my exact position and it makes me feel less neurotic. 

I can't decide whether this thing being on my tongue makes it better or worse. After all, I can SEE it. I'm looking at this thing and wondering if it's cancer.

I'm just still at the point where I'm tearing up at the thought of having to leave my boys behind. This can't happen. 

Tomorrow, they're coming to stay for the weekend, so I need to pull myself together. Thought I'd come on here and also allow myself one day of worry and self-indulgent comfort food, ha!

Wine may also be involved.

If my situation once applied to you, or still does apply to you, how do/did you feel?

And did anyone decide to go private, to speed up the biopsy? If so, did it actually speed anything up, in your experience?

Right... I think that's more than long enough for a first post. Thanks for reading. :) :( :) :(

  • The other photo of Saffy :-



    Nige

  • It was the first time I’d heard of them and not read on any threads etc and was wondering if others may have or are experiencing the like.

    I can’t recall anybody mentioning them but I’ll have a search. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Dani , you are a real gem ! Gem 

    Nige

  • Sadly there isn’t anything in the whole site to help. Somebody mentions sucking on lemons to get the saliva going to expel a stone but to be honest I’d hang on to see what happens with everything else

    Cool sofa pic Sunglasses

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thanks Dani , I have an appt with my gp tomorrow, I’ll see if he has any ideas, but will most likely wait for my hospital appt / review in a couple of weeks.

    That photo actually sums Saffy up, she’s a very affectionate dog, loves to be close.

    Nige

  • Bloody hell, Nige, I expect you could do without some random phrase springing up during that consultation. 

    Ideally, they would explain a lot more what they're talking about. Sorry you're experiencing a new pocket of uncertainty over this. 

  • Oh my word, she gets sweeter with every photo and on the second, lolling on your leg!  Beautiful!  I can see Freddy too. Aw I bet you miss him xx

    I'm not surprised your throat's sore with tubes and whatnot rammed down it.  At least under general you only get the aftermath of pain which is bad enough.  I got your request and accepted but I'm hopeless with tech now so don't expect much.  I used to work with IT at work but since giving up I've forgotten more than I knew!

    I'm out in the garden after doing tasks and the blackbirds are singing away.  Lovely.

    Get plenty of rest till you take Saffy for her walk.  Enjoy the sea air and thank you for the pics!

    Love Gill xx 

  • Absolutely right there - another bump in the road or track - I think my next  review appt will be quite a telling - it’s back up at East Grinstead; Ellise was looking into the hospital and it’s got a very good reputation, a fellow who was there waiting as his wife was in for treatment, they are travelled a long way so as to be treated at the Queen Victoria.

    I’m hoping to get some answers and a next phase of a way forward in my treatment.

  • Hiya SBG.  I was reading another thread and saw your reply to Nige that it's tomorrow when you go again.  That's come round quick - the days are flying by.

    Will you find out definitive stuff or be given your treatment plan?  I'm in the dark really as with H already being incarcerated at the time, I wasn't always present and the letters sent to ours were mainly generic.  Bizarrely, some must have thought he was filling me in on the finer details when I visited!  Er, not quite and I was lucky to get a couple of scribbled sentences out of him!  Grim times but firmly in the past.

    Hopefully, you'll get direct instructions and I'm hoping you'll come away knowing more of what's to come 

    Gill xx 

  • Morning Nige, sorry I’ve been a bit quiet over the last day or so, just catching up and saw this picture of you and Saffy, adorable. Dogs are something really special aren’t they. She adores you as much as you adore her. Just lovely.

    I read you’ve had a new development, our journeys are never dull are they …. She says  very tongue in cheek. I really have everything crossed for you … and everybody else that’s waiting for biopsies, scans or any results …. I’m feeling grim today, so time to give myself a good talking to. Pull up my big girl pants …. And do the washing up LOL.

    It’s lovely having family visit but the amount of washing up it produces just beggars belief.

    Onwards and upwards…. I think I read further down the thread you have a GP visit today so once again I will be thinking of you and sending you healing thoughts.

    Hugs from me and mine xxx