Hello fellow 1% , I've recently been diagnosed with salivary gland carcinoma cancer and just had surgery to remove affected areas. That was no problem and recovering well. My question to other whom are going through the same shit what's the future as the Internet information is poor and out of date. Apparently it is high grade cancer so likely to come back sometime.. has anyone had this for years and doing well, i have many things I want to do and only 55. Cheers Eddie.
Hi Eddie. Sorry to hear about your diagnosis. The worry about cancer returning is always at the back of our minds but as time progresses it does recede somewhat. I have not had the same cancer as you mine was jaw cancer but I have had 2 more occurrences since my first diagnosis at the age of 59. Each occurrence has been successfully treated as they were caught early because I was still having 3 monthly check ups. I have recovered well each time from the ops and am now aged 71. So in my experience early diagnosis is the key to successful treatment. I enjoy each day for what it brings me and am living a happy life and I know you will too.
Hi Eddie. My best advise keep off Dr Google unless you really know where to look you can end up down A rabbit hole that’s hard to get out off. At best the indie is around 5 years out of date at worst it’s wrong. I have a motto in life just live it don’t waste time thinking about reoccurrences. You’re been through treatment so now enjoy life.
hugs Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
A warm welcome to the group, I agree with Lyn and Hazel stay away from Google it’s not accurate or helpful.
I didn’t have same cancer but was devastated at 56 when diagnosed with.T4 tonsil cancer …..Getting through treatment is tough enough but you did it !! so now take time to heal and recover then spend the rest of your life trying to enjoy what makes you happy.
Luckily most of us are monitored closely for at least 5 years ( and you can contact your team after this point. with any concerns if they arise) Reoccurrence can be at the back of your mind but don’t spend the rest of your life worrying. When it occasionally niggles me I give it a thought then do something nice to take my mind back to living my best life .
If it becomes more troublesome there are support groups( face to face and online or Counselling via GP or Cancer charities.
Hi Debbie, thanks and understood about Google. It just came out of the blue the diagnosis. Felt good and no worries just a little lump side of face. Then bang your plans, dreams all up in the air. Cant fault the NHS from diagnoses to having radical surgery (how surgeon described it) the hospital staff all excellent.. Just being apparently a very rare type I was wanting to see who else gone through this. But i suppose everyone takes it differently. I am a very positive person but also realistic.
