Hi everyone,I’m new here having been diagnosed with above cancer.I experienced pain in my throat and had difficulty swallowing foods hence got a referral to hospital and diagnosed with cancer after going through many test and scans and am now under the care of Guys hospital cancer centre awaiting chemotherapy and radiotherapy to start later this month.ive been prescribed morphine sulphate MST and taking 10mg mornings and nights and also 5ml morphine solution but there no relieve to the excruciating pain I’m getting at times.I wondered if anyone else has been diagnosed with this and how their managing the pain.Im a 64 year old male finding this so very hard to cope with and understand.
Hi 231160
Go back to Guys and ask for something better for your pain. Contact your CNS. There are other regimes that might suit better.
Are you adding paracetamol to your pain relief? It's a very underrated analgesic and works well with morphine
One piece of good news is that once the radiotherapy starts and your cancer begins to shrunk the pain should get better for a couple of weeks till the RT starts doing it's damage to the sensitive lining of your mouth and throat. This is a different sort of pain and what you have now should control it. MST and Oramorph certainly kept me comfortable. I had 20mg MST morning and evening, morphine every four hours with paracetamol in between so I was taking something every two hours.
Do you have laxatives too. This is very important while you are on opiates.
I hope you get somewhere soon.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
