Hello everyone, I'm now here and just felt like I needed to post here and ask for some advice from people who have been in the same situation, as I am absolutely petrified! I am 34 and have 4 children and since being referred I have done nothing but worry and feel so anxious all day every day waiting for my first appointment at Maxillofacial clinic as fast tracked suspected mouth cancer..
I'm wondering if anybody can tell me what to expect at this appointment please? Will I have a biopsy there and then?
Here are my symptoms.. in October 2024 I got an ulcer inside my lip which took longer than usual to heal, it eventually did, to an extent, all the pain went away and it was no longer red but it stayed a small white raised soft lump and has been there ever since (so 6 months) I didn't visit the doctor because I had so much going on at that time I kind of just expected that it would eventually go away.. what prompted me to visit the doctor was when a couple of weeks ago I noticed I would get a slightly sore tongue and throat both on the left side, same side the white lump is. She referred me on the 2 week suspected cancer pathway, and since then I have been an absolute wreck! I am panicking so much that I've left it so long and if it turns out to be that then it will be far worse by now.. I noticed very recently that I have very small white "bits" on my tonsils.. I keep telling myself I just have some kind of infection and it's unrelated to the little lump and everything will be fine but obviously the what if is lingering over me and I feel physically sick to think about that! I don't know what I'm expecting from posting, I wasn't sure I should, as I'm not actually diagnosed with anything, but my partner is very much the kind of person that will "cross that bridge if we come to it" and he's put it to the back of his mind, while I feel like I'm going out of mine! Whilst trying to keep a brave face and continue being a mum! I'm so scared and really hope I can hear some positive stories and words of advice and encouragement please! So sorry for the long post!
Thank you so much
Beth.
Hi Beth. Same here. Just been given a urgent referral for the same. I’m hoping it’s a denture lesion that has gone on too long but I’m terrified too
So sorry to hear you are going through the same right now, I know exactly how you are feeling, I've been counting down since she sent the referral almost 2 weeks ago, my appointment is on Monday and if they decide I need a biopsy it will be more waiting and worrying for the results, as I know Monday isnt going to give me the answer I need!
We need to remember that these referrals usually end up being just precautionary and are normally something other than cancer, but when you know there is a chance it could be it's hard to talk yourself down isn't it! Tbh the wait hasn't been that long I'm grateful they sent it through the cancer pathway to get it seen to and sorted the quickest way possible and I'm praying that it isn't that! Also keeping everything crossed that you get the all clear too and it's something easily sorted for you.
Reading the positives from people on here is reassuring, I hope you feel slightly better reading them too.
Good luck to you
Beth.
Thank you. It doesn’t help that my anxiety was already on overdrive as my father is palliative and I need time off really but worry about even getting a sick note( doctor is ridiculous to even do e consult) then feel sick about having time off! Just feel like crying. How do you stay so positive? Good luck for tomorrow xxx
When the referral was first made, I was a wreck, I couldn't sleep, I felt sick all the time.. I had to tell myself that what happens, happens.. and either way it will be fine, if it is that then we deal with it, (people on here have helped to reassure me that the treatment has a high success rate) if it isn't then we can sigh a huge sigh of relief and move on! It's so easy to think and worry about what happens if it is cancer, I'm trying so hard to focus on the fact it might not be and there's no point in panicking without an actual diagnosis. It still hits me in the face a few times a day that I'm just waiting to find out if I have cancer or not, as soon as those thoughts come, I just tell myself "and it also could be something else less scary" and then do something to divert my mind.
I'm so sorry to hear how much you are worrying, about every body else as well. Be kind to yourself, try to relax whenever you can whether that's just sitting with a brew and a book or lighting some candles and soaking in the bath. Deep breaths and focus on the positives.
Good luck to you and I hope and pray you get your good news!
Beth.
Hey, it went exactly the way I hoped and prayed it would.
The consultant said my throat and tongue look fine, the white bump inside my lip, he says he thinks is just a scar from the ulcer and as it hasn't changed in 6 months he isn't concerned about it, he said he didn't feel the need to do a biopsy or anything else and I will have a telephone consultation in 3 months to check I'm happy there are still no changes and I will be discharged. It is a massive weight off!
I really hope your appointment goes the same way and you get the peace of mind you need too. Wishing you all the very best
Hi Beth, I read through your thread and very much relate! I now have to face the wait of 2-3 weeks before I get my biopsy/consult/whatever it is.
I'm so glad your story here turned out well!
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