Hi everyone,
I'm a new member of the group having recently been diagnosed with oral cancer which has spread to my jaw bone. I have a scan of one of my legs that will be donating some bone etc then hopefully I'll have a date for the surgery which I know will involve a neck dissection. I'm remarkably calm at the moment and determined to take one day at a time. Any words of advice as I embark on this epic journey?
Hi Eliza. Sorry to see you here with us. There are quite a few a few of us here who have had a neck dissection so hopefully somebody will pop in to reply.
Regarding your jaw surgery, one of our community champions chris2012 had a similar operation on his jaw. He’s often around in the evenings so should lend a hand.
Fingers crossed everything g goes well and that you won’t need any further treatment
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Eliza,
I had a neck dissection as part of my surgery to remove some lymph nodes. I found my shoulder had dropped as the muscle and nerve were moved so it went "on strike" as the surgeons put it. I'm now 8 weeks post surgery and have found my shoulder has just started to raise back up to normal. I thought I'd share this so you can be prepared for something similar maybe.
I've found keeping positive about everything is helping get me through. Take the wins where/when you can and focus on the positives that will come your way
You've got this!
Hi Eliza. I am sorry to hear about your cancer diagnosis. You have such a great attitude taking it one day at a time as that will really help you with your journey. I have had 3 ops at different times for jaw cancer but have not had a reconstruction. I have had my upper jaw removed but was not a good candidate for a bone transplant as I was told for me there was a high chance of failure. Consequently have had implants put in my cheekbones with a titanium bracket attached to them that my upper dentures attach to. I am very happy with the result. I found that I recovered from the neck dissection quite quickly and was only in hospital for 2 days for this. I could not raise my arm very high for a few weeks but that recovered well and I have no problems now. I had my last op in 2022 and am now living a great life albeit with one or 2 changes.
Best wishes for your upcoming op.
Lyn
Sophie66
Hi Eliza Rose
I had right lower jaw reconstructed from fibula bone in my left leg, at time of surgery I had six teeth removed and neck dissection. Well done you for staying calm, taking one day at a time after surgery is also good. Have complete confidence in your surgical team and their skills in taking us apart and putting us back together! Three years since I had surgery and have always had wonderful support from ‘the team’. Get as fit as you can leading up to your surgery it really helps recovery. If I can answer any questions from my experience, ask away. All my very best wishes to you.
June
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007