Tonsil cancer

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Hi. I am new to the group and trying to support my sister who finished 30 radiotherapy sessions and 2 chemo sessions for tonsil cancer five weeks ago. Other than sips of water she is still using her peg for all medication and food. She cannot bear the thought of food in her mouth as she says the taste is disgusting. She is also suffering badly with phlegm in her mouth and in the back of her throat which she can’t cough up or get it to go down. I understand both of these are normal but does anyone have any suggestions to help her. Many thanks.

  • The drs must have given her rinses to use daily. Make sure she uses them faithfully.  My husband finished his treatment for oropharynx and thise rinses really helped him.  Keep hydrated too.  Always. 

  • Hi Support123, you are right these are normal, after the brutal treatment your sister has just had. As long as she is getting her nutrition water and meds via her PEG, don't worry too much about eating for the time being. Rinsing the mouth with flat coke has helped some people on here or try bi carb in water as a rinse. These things will improve with time.

    Ray. 

  • I use saline washes . 

    Weirdly food helps once you eat a bit as it gets rid of alot of sticky spit. 

    I try to think of it as an exfoliating thing. However its getting harder as the taste changes are such a challenge . So I get where she is coming from. Sorry if that's not much help. 

    I am only one week past treatment. And finding it a real challenge. 

  • Hi my husband uses 1 tsp of bicarbonate of soda and 1 tsp of salt diluted in a pint of water. Rinse and spit as many times a day as she can, or try drinking soda water that helps too. Both advised by oncology team.
    Regards

    Sue x

  • My Husband had the same treatment 2 years ago he did start to eat at about the 4-5 week mark but it was slow and took many months but he did it litte and often to the eating part eat what you feel like and always small portions and increase slowly. He had the same phlegm issue too and this did ease and go over time non of the medication worked just keep fluids up.

  • Hello  

    Welcome to our Community. 
    How is your husband now? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Not so good its now come back and spread to his lungs is now having chemotherapy and finding this very hard, he cannot breathe well due to it being in his lungs, feel not been given much help and advice from the hospital just stuff to read thats all very generic.

    1. Hi,I too had tonsil cancer. After 30 sessions I too had side effects that.  were challenging. Scabbing on my neck,I lost 15kgs due to no swallowing of solids. Lived on porridge and soups. Then Fortisip supplements. Very drymouth,no taste and fatigue are what remains after 6 months recovery. Sense of smell is fine.Weight going back slowly. Its a steady progress which I've been told can easily take over a year. I fully understand your mums frustration.  Alas it's unavoidable to be frustrated. Just patience and help from family and she will settle I to it. 
  • Yes saline washes are good. I did lost of steaming on my face as I also had mucous prob. This worked well. Must mai tain dental hygiene. So important. Good luck.