A post I just read is making me more scared now. How common is this?
Lymph node spread is usually the presenting sign
Do you mean outside the lymph nodes?
HPV tonsil cancer has a 90% chance of cure. 10% can fail and metastasise distantly. Most distant spread is to the lungs
Of that 10% around 15% of that is to the bones.
Please just don't read that thread. Of all that small percentage they are there talking to each other. It's not surprising they have found each other.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
All I know that the drs said in my husbands case, that it metastasized to his lymph node. So his cancer presented as a lump on his neck. Coming from his oropharynx to lymph node. Is that what you mean?
i just happened to come across that post and I wish I hadn’t
All I know that the drs said in my husbands case, that it metastasized to his lymph node. Coming from his oropharynx to lymph node. Is that what you mean?
With oropharyngeal cancer there are two types of metastasis. Local (lymph nodes) and distant (somewhere else in the body)
I'm trying to tell you that spread to the lymph nodes is common and is usually the first sign that anything is wrong. It's still 90% curable
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
i just happened to come across that post and I wish I hadn’t
I know how anxious you are about this. It's doing you no good at all....every bit of your husband's prognosis is completely out of your control. Sticking to your own threads is safest
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I’m sorry I don’t know what that means. Last scan mark had there was no sign of metastasis so I’m trying to hold onto that.
its discouraging Because initially I hear from the doctor that if you were to get any type of cancer this would be the one to have and then it has a high cure rate and that my husbands gonna live many years and then I hear the stories about metastasis and I’m getting a bunch of different information just like they told me that he may need a feeding tube because his throat will be sore they never said anything about him losing His taste the way that he has been they pretty much just said that his throat may be sore and he wouldn’t feel like eating. Now I have all this other stuff that’s going through my mind
I’m sorry I don’t know what that means.
What don't you understand? How can I make it clearer?
I'll try
Metastasis means spread away from the original cancer
Wasn't your husband's first symptom a swollen lymph node where they found HPV positive squamous cell carcinoma?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007