Fear, dread undergoing investigations.

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Hi, I've been reading posts on her the last couple of weeks and have just plucked up the courage to post myself. I'm having 2 week wait investigations for a lump on the floor of my mouth right at the very back of my tongue with painful throat on that side and pain going into my ear. I've got MRI and Ultrasound next week. 

How do you get through this awful period. I'm so fearful for my family and how we'll all cope if this turns out to be my worst fear. Your personal stories have been inspiring and I'm blown away by your bravery but I'm not feeling brave and I really wish I was.

  • Thank you. I know how you're feeling at the moment. It seems to overtake every thought and I'm becoming very aware of every little ache and pain I feel.

    I hope you get an appointment through soon and get some answers and it's also a benign problem.

  • Hi Catriona, thank you for your reply. At the moment I can't bring myself to say or even type that word in case it becomes reality. Stupid and irrational I know! 

    I've realised I didn't ask the Dr how I would get the results of the investigations as I haven't got a follow up appointment. 

  • After I’d had a biopsy taken (this happened twice) it takes two weeks to do the tests to determine whether it is or isn’t C 

    The consultants/ team meet on a Tuesday in my hospital so I got a call Tuesday lunchtime / early afternoon both times - informing me of their findings. Appointments were arrange at short notice by phone (sometimes back up on NHS app) and by letter and / or  email.

  • Morning,

    I'm with you, got a 1.5cm thing on my tonsil, i'm awaiting MRI next week, the stress & mind wondering is awful.. Yesterday had a workout in the morning, went to the allotment for a couple of hours, cooked dinner, done a bit of work & went to jujitsu for 2 hours (just no throat grabbing), had a much better day, today i'm getting busy, was awake at 4am stressing out, if i wake tomorrow im getting up & doing something...  Thoughts with you it's awful, everything is consuming.. best wishes... p.s. im not really emotional, but just found out i'm not that brave & i'm very emotional ! 

  • Two weeks sounds such a long time to wait, just going to try and keep as busy as I can. Really appreciate you all taking the time to reply.

  • The stress is quite overwhelming isn't it. Sounds like you're doing a good job of staying busy. I'm trying to keep busy then I get an urge to look on Google for reassurance which I know is not helpful and instantly regret doing it. 

    I too was awake in the small hours. I had a bad dream and that set off my brain again.

    I'm going out into the sunshine today to do some gardening and hopefully distract myself. 

    Best wishes to you as well. 

  • Hi I’ve been reading your posts and I thought I’d try and give you a bit more info. My husband was were you are now a month or so ago. It is very scary waiting for results and your emotions are all over the place. He had a sore throat for a month just before Christmas and then he found a small swelling in his neck which prompted him to go to the doctors. Fast forward after numerous scans and biopsies he was diagnosed with hpv related tonsil cancer with affected lymph nodes. He is at the end of his 2nd week of treatment, which is 6 weeks of radiotherapy and weekly chemo for five weeks. Though it’s tough going once you get into it then you can deal with it. The doctors and nurses and even the volunteers are amazing. It’s hard to believe but whatever happens you will get through it.Best wishes Sue

  • It is very emotional, I was in floods of tears everyday when my husband was diagnosed, he was handling it better than me. But once you’ve got your results and if you need treatment they are on it and it all falls into place. Let us know how you get on.

  • Hi Whoopsie, great that you did post. And do so whenever you need support/reassurance/exchange of experience, whatever. Your doctors will give you the best possible treatment for whatever it turns out to be but this group is great for understanding and supporting you. Fingers crossed and have a great evening.

    Patrick xx

  • Thanks Sue, I really wish I could fast forward through this phase of uncertainty and not knowing. My fears are for my family and how they will cope. I just dread if I have to have the conversation with them.

    I wish your husband well with his treatment. I'll keep you updated.