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Hi everybody

I was diagnosed with throat cancer just over four years ago and had surgery in February 2021 followed by radiotherapy.

For the most part my recovery has been fairly good although i still have a considerable neck pain and facial swelling also 

recently have had to have all my teeth removed due to the effects of the radiation treatment. 

If anybody has any comments or questions about the treatment or after effects I will try and answer them.

  • Hi .. so sorry to hear of your recent issues due to the late effects of radiation.. 

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • Hi and welcome to our little community. 
    Good to hear your recovery has been fair. 

    We have been talking about neck pain in other threads just yesterday. A proper neck pillow, heat and massage have been mentioned. How are you managing ? 
    How long after RT did you have extractions? Were you given any extra prophylaxis around these? Antibiotics, vitamin e and pentoxifylline are often mentioned and some have mentioned hyperbaric treatment to avoid osteoradionecrosis 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Beesuit

    Thank you for your comments I do use heat and have regular massages on my neck,shoulders,back and also Lymphatic by a qualified therapist who is very good and this does help a great deal but ofcourse is very expensive.

    My last radiotherapy treatment was June 2021

  • Hi KLWLOW. Sorry to hear of the late after effects of the radiotherapy, that's bad luck. Having no teeth now must bring it's own challenges in the eating department. Hope you are coping O.K. with that. I have limited teeth due to my jaw cancer and surgeries and have found that it took a while to get my head around eating differently but I got there in the end. I have had 2 lots of radiotherapy over time but luckily have not had any late effects.

    Lyn

    Sophie66

  • New Here and had all the tests done. I start chemo and Radiation Monday. I will probably be asking question soon. I also just had a few teeth pulled.

    Thank for sharing your experience.

  • FormerMember
    FormerMember in reply to Hammer10

    Hi Hammer 

    Ask anything, start your own thread, lots of support and sound advice from others who have been in the same situation....I had Chemoradio for Tonsil cancer HPV16 plus finished chemoradio June 2023.... tough treatment 

    Peter