Getting Worried Now

Hi Julie. Try not to worry. I was two months from definitive diagnosis to start of RT. I was stage two just as you are. I’m coming up to my six years and fighting fit…. Just getting old. 

Distant spread is not common. Neck lymph nodes are the first place it goes. I had my neck nodes zapped anyway, even though there was no spread on scans 

Hi Julie

T2N1M0 HPV16+ tonsil cancer....finished chemoradio June 2023

I first went to my GP April 2021 with a swollen tonsil... misdiagnosed twice...February 2023 before ENT confirmed tonsil cancer...luckily the cancer had not massively spread...your timeline is probably the norm....good luck with the treatment...keep the forum updated with your progress.

Peter

Thank you Dani, that has made me feel a bit better. 
yes I know the feeling of getting old, I am now 62 and starting to feel it X

That was a long time Peter and cannot believe they misdiagnosed you. Thank you & I will keep you updated X

Hi Julie welcome to the club none of us wanted to join but you’ve found us. We’re a friendly group and always happy to help you. Try not  worry about time scales the treatment is brutal but effective.i was 61 when diagnosed fast approaching 7 years since treatment finished living a fab life. With hindsight my lump in neck was there at least 2 months then when I got put on pathway I was 63 days to first zapping. There’s a tried a trusted protocol trust your team. Ask us any questions nothings to silly to ask. 
hugs Hazel x

Hello Julie

What bad news to get just before Christmas. If it's any comfort, my timeline was similar and my cancer was T4 but here I am two years on, absolutely fine. My oncologist said it's one of the worst cancers to get in terms of the treatment being tough, but one of the best in terms of treatment success rate (over 90%). By this time next year hopefully it will all seem like a bad dream. In the meantime,  this forum is brilliant for info & support.

Sending you love, luck & solidarity,

Catriona

Think we’re twins! Very similar story. I’m probs starting RT feb too. 

Hi

I got the same call 4 years ago on Christmas Eve. I had tonsillectomy beginning of Jan and chemo-radiotherapy started end of Feb. 

I worried too about any delays, but it all worked out.

Just enjoyed a Christmas where I have barely thought about it.

Best wishes, the folks on here will be with you all the way.

Gill

Hi Gill 

Good to hear from you glad yiu had a great Christmas 

hugs Hazel x